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My daughter will be 2 next month and she still doesn't walk

Posted by on Sep. 2, 2013 at 2:04 AM
  • 48 Replies
She's been to a neurologist and her pediatric dr but no answers :( anyone else dealing with anything like this ?

**crebal palsy was brought up but said not to be the case and she was said to be high functioning autism my her neurologist but when we went for her 2nd appointment the dr said she's not autistic she does how ever recive occupational and speech therapy and still hasn't made much progress
by on Sep. 2, 2013 at 2:04 AM
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Replies (1-10):
amonkeymom
by Gold Member on Sep. 2, 2013 at 1:32 PM
1 mom liked this

Has she been tested for things like autism, cerebral palsey, etc?  What has the neuro said about her development?

happymommy1105
by Gold Member on Sep. 2, 2013 at 1:35 PM
1 mom liked this

physical therapy. 

babies can't wait program

developmental ped

neveragain17
by Member on Sep. 2, 2013 at 1:45 PM
I updated in my original post :)

Quoting amonkeymom:

Has she been tested for things like autism, cerebral palsey, etc?  What has the neuro said about her development?

hayliedlr
by JoAnna on Sep. 2, 2013 at 3:28 PM
Same thing for my cousin. She didn't walk until she was almost 3. She's 15 now and normal. Her parents still don't know why it took her so long to walk.
yezay
by Bronze Member on Sep. 2, 2013 at 4:16 PM
Same thing for my son. He's six now but didn't walk til around 2 and didn't talk til 4. They have no explanations and we've been to neuro and genetics and all they do is rule things out.
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Mamavelt
by Bronze Member on Sep. 2, 2013 at 4:24 PM
Are there other developmental delays? You mentioned her receiving OT and speech, what about physical therapy?

Do you know why cp was ruled out? Has she had an EEG? At what age did she see a neurologist? Oftentimes doctors are reluctant to diagnose too young to allow for late bloomers.

I know it is causing you fear and worry, but try to stay strong, keep up the therapy and focus on all of the wonderful things your baby CAN do.
cupcake_mom
by on Sep. 2, 2013 at 4:26 PM
Good luck. Sorry that I have No advice
neveragain17
by Member on Sep. 2, 2013 at 6:02 PM
She not talking yet she started saying words mom hi bye then she stopped I think that's why we got the autism diagnoses she did have an EEG done came back normal but the dr for some reason cancelled her MRI she went th first time at 18 months then again at 20 months an she goes back October 8th

Quoting Mamavelt:

Are there other developmental delays? You mentioned her receiving OT and speech, what about physical therapy?



Do you know why cp was ruled out? Has she had an EEG? At what age did she see a neurologist? Oftentimes doctors are reluctant to diagnose too young to allow for late bloomers.



I know it is causing you fear and worry, but try to stay strong, keep up the therapy and focus on all of the wonderful things your baby CAN do.
Mamavelt
by Bronze Member on Sep. 2, 2013 at 6:48 PM
2 moms liked this
I would keep pushing for answers... So she gets the appropriate care and treatment, but also so you can find some peace. I know for me, the day I learned of my son's cp diagnosis was one of the happiest of my life. I know that sounds strange, but it meant I could let go of the fear of the unknown. I had something concrete that I could call by name, research and accept. It hasn't been easy... Somedays were downright heartbreaking ( I still have some doozies occasionally) but we have coped, learned to use the skills he has and adapted to overcome his weaknesses.

One day, that doesn't seem that long ago, I sat in a doctor's office w tears streaming down my face as a well meaning doctor offered a catalogue of all of the limitations my son would have. He would never walk, talk, feed himself, go to a regular school, perform basic care tasks. I was even told my son was mentally retarded.

Jack is now a month shy of 14 - he just started high school- he has a 1 on 1 and accommodations like a computer for assignments, but he has been designated gifted and is in all general education classes with typical peers. He speaks constantly and eloquently. He can walk on his own ( he has a horrible gait but he has independence) - he does use a walker at school for safety. His goal is to either get an engineering degree or go to culinary school. I m not sure if he'll follow those dreams, or find others along the way...I still worry about him... He can feed himself, but his table manners are atrocious - it is hard eating w such bad fine motor skills and I can't help but wonder how girls will react when he starts dating. His vision is effected and I wonder if he'll ever be able to drive ( I keep praying that self driving cars come soon). I worry, I worry, I worry- but I'm a mom , and that's my job- but he is so much more expressive and capable and independent than I ever dreamed.

I tell you this to remind you doctors don't have all the answers and you can't presume to know where your daughter's abilities will take her. Make therapy your job, engage her, facilitate play, talk to her constantly: narrate, describe, lable everything, give her plenty of opportunity to be around other kids to motivate her. And be strong and hopeful , so she will know how to be strong and hopeful too!

If you ever need some encouragement or to ask questions or need to vent please feel free to reach out to me. I know how lonely it can feel to face these challenges alone.

You and your baby girl are in my thoughts and prayers.
kidlover2
by on Sep. 2, 2013 at 6:56 PM
I would definitely keep bugging the doctors for answers. Can you switch pediatricians? My dd was slow to speak and everyone kept saying she was fine. Her doctor was the one who kept ordering the tests and making specialist appointments until we finally figured out a possible solution and she is getting the services she needs. We weren't wrong and my dd "wasn't just fine" and I was lucky enough to have a pediatrician who cares about her patients.
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