Dealing with Lupus
/ General Discussion
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My son is 4 years old and I have SLE. While we were outside playing today, I told him that I needed to go sit in the shade. He asked why I was sitting in the shade and not playing with him. I asked him to come over and play with me in the shade, but he said he was busy playing in Zach's old garden. He became very angry with me that I would not play with him. How do I explain to him that I am sick and can not be out in the sun? It was WAY to hot and humid to put on the large brimmed hat and long sleeves. I do not know how to explain this to him without frightening him. He has already experienced the loss of his twin brother and do not want him worrying that I will die too. At this time my Lupus is under control and I am doing well. He does not remember the time that I was having a horrible flare. Any advice would be greatly appreciated.
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