My youngest son has ACC ( Absent of the Corpus Collestrum) and I am having a hard time finding a support group or anyone else that has dealt with this. I live in PA and I have to take him to Hershey Medical Center for specialist because not many doctors have dealt with this and Im just wanting someone who understands what I am going thru to talk to and possibly tell me what I might be in store for in the future. If you have dealt with this please...lets talk.
I hate to admit it, but some of the rarer medical conditions out there do not have a support group. I have to belong to a larger support group for two of my conditions. It makes for an interesting time in finding medical providers to understand me.


- pdanner2004
on Jan. 20, 2010 at 2:05 PM