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Has anyone heard of ACC

Posted by on Jan. 20, 2010 at 2:05 PM
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My youngest son has ACC ( Absent of the Corpus Collestrum) and I am having a hard time finding a support group or anyone else that has dealt with this. I live in PA and I have to take him to Hershey Medical Center for specialist because not many doctors have dealt with this and Im just wanting someone who understands what I am going thru to talk to and possibly tell me what I might be in store for in the future. If you have dealt with this please...lets talk.

Posted by on Jan. 20, 2010 at 2:05 PM
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dawncs
by New Member on Jan. 20, 2010 at 10:52 PM

I hate to admit it, but some of the rarer medical conditions out there do not have a support group. I have to belong to a larger support group for two of my conditions. It makes for an interesting time in finding medical providers to understand me.

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dawncs
Recreational activities & Special Needs (All special needs; cognitive & physical)
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