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Permanent Hearing Loss

Posted by on Jan. 13, 2014 at 10:27 AM
  • 14 Replies

Last Friday, I took my 3 year old Brody to his follow-up hearing test after his surgery last month. We've suspected hearing loss for a few months now, but so far the doctor was unwilling to call it since he had so many issues with fluid in his ears. After taking out his adenoids and putting in a new set of ear tubes, we can rule out that interference. 

But he still failed his hearing screening. He scored mild to moderate hearing loss in one ear and moderate to severe in the other. 

I'm disappointed, obviously, but more than that I'm just happy to have caught it. If it's there, it's there. We can't help that. So now we move forward with fixing it and getting him up to speed with his verbal delay and other affected areas. 

It looks like we're going to do another different type of hearing screening to get specific numbers on the areas of loss, then he'll need an MRI to rule out an underlying cause in the brain affecting his hearing (apparently this is standard protycol although the doc believes it to be genetic). After that, we'll get him fitted for hearing aids and finally my son will be on the same page as all those around him. 

by on Jan. 13, 2014 at 10:27 AM
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Replies (1-10):
Marz31
by Silver Member on Jan. 13, 2014 at 1:25 PM

Hugs for the delay and the doctor not taking action earlier. but now you have a plan and can get him hearing as much as possible. that's a great thing. glad it was caught when it was! 


trfgirl56701
by Melissa on Jan. 13, 2014 at 3:36 PM
1 mom liked this

I'm sorry you got that news, but I'm glad that you finally have more answers and are able to have a plan of action to go forward.

Nighttiger
by Ashley on Jan. 13, 2014 at 5:22 PM
1 mom liked this
As sad as it is at least now you know.
dawncs
by Member on Jan. 13, 2014 at 8:16 PM

I know it is frustrating getting an answer to Brody's problems, but the testing will help him in the end. When you finally get his diagnosis, you need to update the school district (http://www.wrightslaw.com/) if he is getting services along with his service providers. It will help him get better services which can help him reach his full potential in life.

the3Rs
by Platinum Member on Jan. 13, 2014 at 9:48 PM
While it's not the best news, at least it IS news. Now you can move forward getting him what he needs.
adamsmom0116
by Gold Member on Jan. 14, 2014 at 8:39 AM
1 mom liked this

Well, at least on the bright side you now know what you can do to help him going forward.

mickstinator
by on Jan. 14, 2014 at 9:44 AM


Quoting the3Rs: While it's not the best news, at least it IS news. Now you can move forward getting him what he needs.

that is exactly how i feel about it. this feeling is much better than before when i didn't know what was going on with my son to make him have so many issues. that was torturous.

mickstinator
by on Jan. 14, 2014 at 9:46 AM


Quoting dawncs:

I know it is frustrating getting an answer to Brody's problems, but the testing will help him in the end. When you finally get his diagnosis, you need to update the school district (http://www.wrightslaw.com/) if he is getting services along with his service providers. It will help him get better services which can help him reach his full potential in life.

Thanks. Yes, I just got him enrolled with the school district for the state-offered speech therapy. They were incredibly difficult to work with in the begining, but now they're pretty supportive and helpful. His speech pathologist is going to bring in a hearing specialist during his therapy sessions at least until he has the hearing implants. 

mickstinator
by on Jan. 14, 2014 at 9:48 AM


Quoting Marz31:

Hugs for the delay and the doctor not taking action earlier. but now you have a plan and can get him hearing as much as possible. that's a great thing. glad it was caught when it was! 


That was the most frustrating part. I understand his hesitancy to call anything, but he has had 4 hearing screenings since September (with another scheduled now for later this month). I can't tell you how many times I went to his doctor thinking I'd finally find out some news just to be told we'll have to wait longer. This was at least SOMETHING I can work with. An answer.

deccaf
by Platinum Member on Jan. 14, 2014 at 10:10 AM

I'm sorry for the news, but so glad you have begun a way to fix the problem.  Hopefully all will go more smoothly now.

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