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• by
  • DistressMOM
  on Mar. 31, 2008 at 1:46 PM
• A little about my son and our current situation
  
  I am the mother of a 3.5 year old boy. He was diagnosed with autism at 2 years old. But recently as I was researching online I found out about hyperlexia and it fits my son’s description. My son has an obsession with letters and numbers. By the time he was 2.5 he could identify the letters of the alphabet, numbers, shapes and colors. He loves books, letters, and numbers. He knows the entire alphabet in uppercase and lowercase and the sound of each letter.  He is already starting to read and loves to sound out words. When I ask him to read a word he replies lets sound it. He will sound the letters and put them together and then say the word. Yesterday his grandfather gave him an Easter basket and it had a bag of skittles in it. When I gave him the skittles and asked him what is this? He could not tell me because the bag was different, they were sour skittles, therefore I asked him to read it to me and he looked at the writing and responded skittles. He has such an amazing memory he knows his name, address, age, date of birth, his phone number, his daddy’s phone number, his mothers name, his fathers name, his sisters name and memorizes  every ones name ones he meet them. I notice when he was almost 3years old that he had memorized all the books that we read him at bed time. He can differentiate between different languages that he’s had exposure to. He knows things that I don’t even know he knows. He surprises me and his speech pathologist all the time.  He learns things so fast but yet he is having a very hard time with Boy vs. Girl, Me vs. You I am very unhappy with his school because when we met the last time for a parent and teacher conference his OT said that my son had mastered the letters of his name and I had to correct her and say no he mastered the letters of the alphabet. I also explained to his teacher that my son was staring to read and she turned to the speech pathologist and told her that it was her department the speech pathologist turned back to her and said not my department and then his teacher responded I wouldn’t know what to do.  I also see a great deal of progress from the one hr a week that he spends with a private speech pathologist and I don’t see the progress from school. Initially when the school, the child study teem social worker and I meet  I asked them if they will help with potty training and they responded that s it was there number  one (1) priority was have him potty trained . Well they have given me 100000 excuses. I potty trained my son and they did not help. This gives me the impression that they are not living up to his expectation and they are not going to teach him things that I know he is capable of learning and doing with a little more discipline and encouragement.  I am looking for a new school in NJ and I spoke with my sons social worker who I have build a relationship with and she said that the pre-k teacher at the public school in my district has an autistic son and that she is going to have my son sit in the classroom for at least one day so she can give us an assessment as far as him functioning in a regular classroom next year. If he is not ready I am going to request that next year he goes to a regular pre-k class for half the day and special pre-k for the other half.  With continue services of OT, PT, and speech therapy.  Thank you and sorry for my rambling Any advice and comments welcome

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• by
  • glerby
  on Apr. 1, 2008 at 8:41 PM
• Hi my name is Jessie and I have a 3 year old with severe apraxia of speech and global apraxia.  He also has a sensory disorder and severe expressive language delay.  I am interested in using the vantage plus for him by PRC...but I can't find a testing center in my area and don't know what steps I need to take...his school isn't going to help me..they barley wanted to give him speech therapy for more then one day a week...as it is we only got two days...
  
  we are testing the vantage out on our laptop and gabe can already tell me who his friends are and what the weather is...his favorite toys and if he is hungry...these are things he doesn't do unless prompted to do so...so it is exciting to have him communicate with us that way...
  
  anyway i am very excited about finding this message board...any help would be great!!!

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• by
  • Mommasarah101
  on May. 2, 2008 at 3:15 PM
• What exactly is Apraxia? I ask this because my 10 year old nephew who i have had for six years has only been given the broad diagnosis of MH. That dosent tell you a whole lot. He has severe speach delay, motor delay, and has the expressive capabilities of a two year old. No matter how many doctors we see or how many tests we have done we cant get a specific diagnosis or reason why.
  Come check me out on Cafe Mom. Mommasarah101

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• by
  • bhorton
  on May. 3, 2008 at 9:35 PM
• Hi.  Have you been to a geneticist and have they studied his DNA for possible translocations in his genes?  My son has no specific diagnoses.  He has a gene that duplicated itself partially, attached itself to another gene and presents itself in different areas.  ie speech, motor control, etc.  Thay took a blood sample and figured this out when he was a baby.  He is almost 5 now.  Btw,  what is MH?  Apraxia has to do with inability to move correctly as in motor function of the central nervous system.  Hope this helps.  :-)

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• by
  • lov4God
  on May. 16, 2008 at 7:33 PM
• Hello, My name is Tammy I'm 32 I have three children my daughter Heather is 14 and my boys' RJ 8 and Wyatt going to be 7 this Sun. Wyatt was born w/klippel-Feil Syndrome. He has speech delays. and had tubes 4 times and we found out he has Otis's he lost hearing in his left ear and a little out of his rt ear. So we're learning sign language. He has a heart to read but can't. so his special ed teacher introducing four words at a time so hopefully one day he can read a book by singing it to me.

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• by
  • tgoodwin
  on May. 17, 2008 at 2:49 AM
• Hi I am  mother of a lil boy that will be turning 3 in August. He was diagnoised to have a Behavorial and Mental diability. He see's four therapist a week and attend a theraputic school Monday thru Friday from 9am to 2pm. Neither his doctors or therapist could tell me why my son has these delays and behavoial problems. While I was pregnant with him his father was very violent towards me and I cant help to think that maybe just maybe if I would of got help sooner he would of turned out differently. I blame myself for what has happened to my son and with a child on the way I beg for advice on what I should be looking for or doing to stay from getting frustrated at times. He doesnt talk and seem to have screaming session for 1 to 3 hours for no reason. Can anyone relate to me if you can please respond. thank you!

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• by
  • kimsardo
  on May. 28, 2008 at 2:54 PM
• Hello, My name is Kim and I my son Brandon is almost 5yrs.  Brandon has Down syndrome.  He is not very verbal and we are using some sign language.  I'm interested introducing some kind of picture communication but it seem overwhelming.  I'm sure I'll get some tips here.  Thanks
  Kim

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• by
  • Mommy_is_cute17
  on Jun. 13, 2008 at 12:45 PM
• My name is Megan and I have a son who just turned 2!!!! He is currently dealing with many doctors and case workers because he has a couple issues which include bad fine motor skills,  no speech and he has a hearing problems I don't know all the technical names for this because I am new at this whole thing we just learned about 3 months ago that he had these problems!!!! I was told to learn sign language and work with him as much as I can He also has many people coming to the house to try to help him!!!! I am so stressed about this as I don't even know hardly anything about thiis stuff and I don't know where to go to get help!!!! I have not very much money and can't afford the sign classes so I have been trying to learn from other sorces if if would like to talk please send me a message!!!!

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• by
  • ShootingStars08
  on Jun. 27, 2008 at 7:01 AM
• Hi my name is Josie. I have 2 kids. Tony 3 and Lily 10 months. My son has a slight speech problem. He will in a special program calle dthe Judy center. It is with the public school system. I am really happy because its free. I am lookin gfo rmoms or dads that have the same issue that i am having. It is stuff trying to understand him some time. I am also 85%deaf in my right ear which makes it even harder. He has some delay in learning. They think he will catch up fast if he is around other kids.

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• by
  • mbnichols
  on Jul. 5, 2008 at 7:04 AM
• my 9 yr.old daughter was recently diagnosed with hyperlexia..i have never even heard of it until she was diagnosed.it is something we are just learning about.if anyone knows more anout it than what can be found on internet or is going through it also would love to hear what works fo you..

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