At A Glance: Links, Clothes, Books & *TONS OF INFO*

[MoonNStarMommy]

FEEL FREE TO SHARE ANY OTHER LINKS YOU MAY HAVE IN THE COMMENTS BELOW!!  LET US KNOW WHICH ONES YOU REALLY ENJOY AND FIND HELPFUL!!!

Some General Preemie Parent Links
Parents of Premature Babies - http://baby.lovetoknow.com/wiki/Preemie_Development
Prematurity.org - http://www.prematurity.org/
BLISS - For Parents by Parents - http://www.forparentsbyparents.com/baby_babies.html
Come Unity - http://www.comeunity.com/premature/
Mayo Clinic - http://www.mayoclinic.com/health/premature-baby/FL00108
Preemie Parenting - http://www.preemieparenting.com/

This link deals with what risks and outcomes are expected at certain gestations.  Very scary for those pregnant expecting a preemie - but interesting to look back on after you have one.
http://www.geocities.com/Heartland/Acres/2077/table.html

Common Preemie Health Issues
http://www.meriter.com/living/preemie/problems.htm

Listings of various people (medical) who will most likely be involved in your preemie child's life!
http://www.meriter.com/living/preemie/nicu/people.htm

This is the premature infant according to WebMD ...  it has links to various - common - issues that preemies deal with.
http://aolsvc.health.webmd.aol.com/hw/raising_a_family/tn8417.asp

Another general Preemie Link... http://www.pediatrix.com/body.cfm?id=7&action=detail&aeproductid=Adam2004_1&aearticleid=001562&oTopID=50

An article on Kangaroo Care and it's benefits
http://www.prematurity.org/baby/kangaroo.html

This is a GREAT link... it has many other links with many many possible issues and questions that Preemie Parents may want to know about.  This - in my opinion - is a great resource link.
http://www.prematurity.org/baby/index.html

Looking for Preemie Clothes?? & other items!
http://www.preemie.com/
http://preemiesrus.com/
http://www.nurtureplace.com/cgi-bin/htmlos.cgi/clothing-catalog/test.html?SRC=PR
http://www.ittybittybundles.com/
http://www.annaspreemie.com/index.html
http://www.babylinq.com/

October 15 is Pregnancy & Infant Loss Remembrance Day.. http://www.october15th.com/

Some Links on Preemie Development... (for newborn and older preemies)http://www.comeunity.com/premature/development.htmlhttp://www.ahealthyme.com/topic/preemiedevhttp://www.prematurity.org/development.htmlhttp://www.meriter.com/living/preemie/understand/understand.htmhttp://baby.lovetoknow.com/wiki/Preemie_Developmenthttp://www.kristinaseleshanko.com/PreemieDevelopment.htmhttp://www.babycenter.com/expert/baby/babydevelopment/2706.htmlhttp://www.mercydesmoines.org/services/birthingCenterPreemieDev.asphttp://www.burpingbaby.net/preemie_development.htmhttp://www.kidshealth.org/parent/growth/growing/preemies.htmlhttp://home.vicnet.net.au/~earlyed/dec/dthings.htm

Parenting your Preemie Article by WebMD
http://www.webmd.com/content/chat_transcripts/1/100204.htm

Caring for your Preemies at Home by Mayo Clinic
http://www.mayoclinic.com/health/premature-baby/FL00117

Some Links to Links and more links!!http://www.burpingbaby.net/preemie_development.htm

And something that I just discovered today (doing this link collection!!) That there is now a PREEMIE MAGAZINE out and you can get a free 1 year subscription!!http://www.preemiemagazine.com/about/about.php
And they have a forum too ... https://preemie.clinicahealth.com/index.pl

Here is a post of ours about a 21 week gestational preemie girl who was born at 10 oz :)  She SURVIVED and is doing well! 
http://www.cafemom.com/group/503/boards/read.php?post_id=15553
Here is a link to an article about her too
http://www.msnbc.msn.com/id/17237979/

Will keep adding links as we get them! :)

LINKS ADDED BY PREEMIE MOM MEMBERS:
http://www.preemietalk.com/ which is a place where parents of preemies can share their stories, ask questions and seek support.  Please visit the site as I would love to know all of your preemie's stories. Added by: PreemieTalkMom

A place I go for information is www.preemiegroup.com. They have some excellent information and support groups too.  Added by: BraysMommy

I like the March of Dimes website.  They haave places for you to share your story, buy products, and information about prematurity and other baby conditions, as well as helpful pregnancy info.
www.marchofdimes.com   Added by: hlplay82

Wow, great resources!  Here are a few that really helped me:
http://www.tinytruman.blogspot.com/  Follows the amazing journey of a 23 weeker through his five month NICU stay.  He is home now and he's doing so well.  In my darkest hours, I found this site uplifting and reassuring.
http://www.earlyarrivalinc.com/about_journal.html This is a baby book designed especially for preemies.  It has special places to record daily weights, types of beds, phototherapy(bilis), feeding info, etc.  Having this book while my daughter was in the NICU was wonderful.
http://www.chickenlittlepreemie.com/CLPfabrics.htm adorable clothes
http://members.aol.com/KBone91/touch.html by a fellow preemie parent.  Scroll to the bottom of the page to find links to more preemie pages. Added by Mom2Kayda

Preemie parenting on Baby Center  Added by: Mom2trewife2vic

http://www.preemiepride.com ~ Clothes from micro preemie (0-3lbs) to infant (16-20lbs).  Passies, diapers, gift baskets... all kinds of good stuff for preemies.  Added by: CAdkins1979

I have to share this with you.  It's a little sign you hang on your infant carrier or stroller to discourage touching.  I wish I'd had one for my little guy. http://www.mytinyhands.com/  (I think they're around $7) They Say "PLEASE WASH YOUR HANDS BEFORE TOUCHING MINE"  Added by: quietside

IF YOU HAVE A LINK TO ADD - PLEASE JUST LEAVE IT IN THE NOTES AND I WILL ADD IT!

Here is a list of preemie book suggestions!  If anyone else has any others to add, or any that you found really helpful or enjoyable - please add them in the comments!  THANK YOU!!!

Early days

Neonatal intensive care: what every parent needs to know
by Jeanette Zaichkin (1996)

Handbook of neonatal intensive care
by Gerald Merenstein, M.D. and Sandra L. Gardner (ed.) (1997)

Baby E.R. : The heroic doctors and nurses who perform medicine's tiniest miracles
by Edward Hume (November 2000)

Kangaroo care: the best you can do to help your preterm infant
by Susan M. Ludington-Hoe and Susan K. Golant (1993)

Baby Talk: for parents who are getting to know their special care babies
by Dale Hatcher and Kathleen Lehman, Centering Corporation (1989)

Baby hands and baby feet: poems and drawings from the nursery
by Nancy J. Kennedy and David Pegher (1995)

Baby massage: parent-child bonding through touch
by Amelia D. Auckett and Tiffany Field (1989)

Loving and letting go: for parents who decide to turn away from aggressive medical intervention for their critically ill newborn
by Deborah L. Davis (1993)

Emotions and psychology

Early passage: a journal for parents of preemies
by Priscilla Hernandez Hacker and Carolyn Ringo (September 2001)
 

The pain of premature parents: a psychological guide to coping
by Michael Hynan (1987)

Becoming a Father: contemporary social, developmental, and clinical perspectives
by J. L. Shapiro, M. J. Diamond, & M. Greenberg (Eds.) (1995)

Parenting your premature baby and child : the emotional journey
by Deborah Davis and Mara T. Stein, Fulcrum. (May 2004)

Parents of premature infants: their emotional world
by Norma Tracey et al. Whurr Publishers (July 2000)

Learning to love: the developing relationships between mother, father and baby during the first year
by Lorraine Rose, ACER Press (October 2000)

Before their time: lessons in living from those born too soon
by Daniel Taylor and Ronald R. Hoekstra (August 2000)

Empty cradle, broken heart: surviving the death of your baby
by Deborah L. Davis (November 1999)

The fate of early memories: developmental science and the retention of childhood experiences
by Mark L. How (1999)

Development of premature babies

The development of infants born at risk
by Deborah L.Reich, Jill Nagy and Joseph F. Holmes

Developmental and Behavioral Characteristics of Preterm Infants
by Lynn B. Hadley, Deborah West, Alison Turner, Sue Santangelo (September 1999)

Breastfeeding

Breastfeeding your premature baby
by Gwen Gotsch (March 1999)

Mothering multiples: breastfeeding and caring for twins or more
by Karen Kerkhoff Gromada (July 1999)

Breastfeeding the infant with special needs
by Donna Dowling (June 1997)

Stories by parents

Growing Sophia: the story of a premature birth
by Rochelle Barsuhn (April 1996)

Coming to term: a father's story of birth, loss, and survival
by William Woodwell (September 2001)

Laurel's primer for parents of micro-preemies
by Laurence J. Gist (January 2000)

Miracle birth stories of very premature babies : little thumbs up!
by Timothy Smith (May 1999)

Living miracles: stories of hope from parents of premature babies
by Kimberley A. Powell and Kim Wilson (April 2000)

The peace of God - a mother's journal of God's grace for her and her family during a high-risk pregnancy and the premature birth of their daughter
by Sara J. Groenheide (November 2000)

Born early : a premature baby's story
by Lida Lafferty, Bo Flood, Rebecca Young (Photographer), Nancy B. Flood (May 1998)

Born too soon: the story of Emily, our premature baby
by Elizabeth Mehren (August 1998)

You are not alone - 20 stories of hope, heroism, heartache and healing told by the parents of children treated in the NICU
by Sabra Albritton et al.(eds.) (September 1998)

Premature baby and child care
Your premature baby and child : helpful answers and advice for parents
by Amy Tracy and Dianne Maroney (September 1999)

The premature baby book : a parent's guide to coping and caring in the first years
by Helen Harrison and Ann Kositsky (July 1983)

The preemie parents' companion : the essential guide to caring for your premature baby in the hospital, at home, and through the first years
by Susan L. Madden (September 2000)

Your premature baby : everything you need to know about the childbirth, treatment and parenting of premature babies
by Frank Manginello and Theresa Foy DiGeronimo (March 1998)

Caring for your premature baby : a complete resource for parents
by Alan H. Klein and Jill Alison Ganon (October 1998)

In time and with love : caring for the special needs baby
by Marilyn Segal, 2nd ed. (January 2001)

General parenting

Touchpoints : your child's emotional and behavioral development
by T.Berry Brazelton (March 1994)

Raising your spirited child: a guide for parents whose child is more intense, sensitive, perceptive, persistent, energetic
by Mary Sheedy Kurcinka (September 1992)

What's going on in there? : how the brain and mind develop in the first five years of life
by Lise Eliot (October 2000)

Becoming the parent you want to be : a sourcebook of strategies for the first five years
by Laura Davis and Janis Keyser (March 1997)

Parenting the fussy baby and the high need child : everything you need to know - from birth to age five
by William Sears and Martha Sears (September 1996)

Positive discipline : the first three years - laying the foundation for raising a capable, confident child
by Jane Nelsen, Roslyn Duffy and Cheryl Erwin (December 1998)

The secret of happy children
by Stephen Biddulph (April 1998)

How to talk so kids will listen & listen so kids will talk
by Adele Faber, Elaine Mazlish, Kimberly Ann Coe (October 1999)

Sleeping

Healthy sleep habit, happy child
by Marc Weissbluth (April 1999)

Sleep better! A guide to improving sleep for children with special needs
by Vincent Mark Durand (November 1997)

Communication and speech development

Early language development in full term and premature infants
by Paula Menyuk, Jacqueline W. Libergott and Martin C. Schultz (March 1995)
 

How to talk to your baby: a guide to maximising your child's language and learning skills
by Dorothy P. Dougherty (September 1999)

The new language of toys : teaching communication skills to children with special needs: a guide for parents and teachers
by Joan E. Heller Miller and Sue Schwartz (April 1996)

Baby signs : how to talk with your baby before your baby can talk
by Linda Acredolo and Susan Goodwyn (April 1996)

Long-term medical problems

Children with cerebral palsy : a parents' guide
by Elaine Geralis (September 1998)

Hydrocephalus : a guide for patients, families and friends
by Chuck Toporek and Kellie Robinson (February 1999)

The out-of-synch child : recognizing and coping with sensory integration dysfunction
by Carol Kranowitz (March 1998)

ADHD in the young child : driven to re-direction : a book for parents and teachers
by Cathy L. Reimers and Bruce A. Brunger (1999)

Behavioral intervention for young children with autism : a manual for parents and professionals
by Catherine Maurice (ed.) (December 1996)

Pediatric tracheostomy home care guide
by Cynthia M. Bissell (April 2000)

That's my child : strategies for parents of children with disabilities
by Lizanne Capper (April 1996)

Children with special needs : encouraging intellectual and emotional growth
by Stanley Greenspan (January 1998)

Living with a brother or sister with special needs : a book for sibs
by Patricia Vadasy and Donald Joseph Meyer (November 1996)

Children's books

Believe in Katie Lynn
by Bartholomew Resta (August 1995)

Waiting for baby Joe
by Pat Lowerey Collins (July 1990)

Great links to more books

Special Needs & Disabilities ...  from ADHD to prematurity and back...
http://www.childrensdisabilities.info/books/index.html

Preemie Books
http://www.prematurity.org/premiebooks.html

Books Recommended by other Preemie Mom Members!!

RECOMMENED BY:  ekholl
I was given a book right after my son was born and it really helped me to understand what all the terminology and monitors and such meant. I highly reccomend it. It's easy reading and not boring.

THE PREMATURE BABY BOOK: A Parents Guide to Coping and Caring in the First Years (Paperback)
by Helen Harrison

[Podycat]

Sadly, Preemie Magazine went out of business, they had even teamd up with The March of Dimes..but something went wrong. It was an amazing magazine and I wish they would of kept their website open with all of the stories and links.

I may write to the lady who started it and ask what happened since I was aware of it as it was starting.

[MoonNStarMommy]

yeah I forgot they closed it down...  that is really sad because it was such an amazing resource!   Let me know if you hear anything!

[GreysMama]

www.miraclebebe.com Offers products, resorces, services and more Nicu companion medical and personal journal- ebook $1. 35 beautiful pages printable on home computer.