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Posted by on Sep. 29, 2011 at 12:41 PM
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We have a new school nurse.  It's her very first year as a school nurse so we have had some.... misunderstandings... So I am already on my last nerve and now she wants to make changes to my sons routine at school to convenience herself and told me she was going to call the doctor and discuss it.  I told her not to call the endo and that she can talk to me and I would talk to the doctor.  Do you allow your childs school nurse to call the endo?

Posted by on Sep. 29, 2011 at 12:41 PM
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jesicaRN
by Member on Sep. 29, 2011 at 6:39 PM

 Essentially our Endo says (and even in her orders) that what I say goes as well, as I know my child's needs.  So if it is necessary I don't mind my RN talking to the Endo, as my Endo really gives us the power to do what we feel is right for our situation.  And my Endo wouldn't make any changes unless she and i spoke about it.  She really feels that empowering the caregivers helps  (when they know what they are doing) because it is a 24 hour disease.  I think the RN may feel the need to clarify perhaps some things (especially being a new RN) and isn't quite comfortable with just talking to you, because changes and her role as a nurse can be very sticky and she is trying to play it safe, so I am not sure as to what her intentions are.  Are they to shut you out ? (which is not good) or are they just because she is trying to clarify, understand her role, the orders and do it by the book until she gets more comfortable in her role.  alot of times as a RN our moto is "if it isn't documented it isn't done" and perhaps she feels the need to approach the Dr (who, as an RN she takes her orders from) until she grasps how this entire disease is...because it is so very different than many other diseases.  So, I guess this doesn't help any because I just don't know what your school RN's intentions are.  If they are to just ignore you and what you feel your child needs, than no, it isn't okay and that needs to be addressed.  If it is because she feels comfortable approaching the Dr. but wants to include both your needs, then sure, call away. 

Jadegirl1819
by Member on Sep. 29, 2011 at 7:11 PM

She wants to set up a sliding scale for bg corrections and for carbs eaten so it's easier for people covering her.  I do understand.  I just don't like being told that she wants to do something and that she is going to call the doctor.  That's just a line I don't want crossed and I believe I marked that box saying it wasn't okay for her to call on the IHP. 

I know it sounds silly to get upset about but I think this was just my breaking point.  Mistakes have been made and I am trying to be patient as she gets things figured out.  Or maybe it was that she is telling me how diabetes is treated and almost talking down to me.  She new VERY little about diabetes a month ago.  On the first day of school she was going to send my 6 year old on his way after giving him a juice box to treat a bg of 43, no recheck, nothing.  Thank God I was there.

I'm just tired.

Quoting jesicaRN:

 Essentially our Endo says (and even in her orders) that what I say goes as well, as I know my child's needs.  So if it is necessary I don't mind my RN talking to the Endo, as my Endo really gives us the power to do what we feel is right for our situation.  And my Endo wouldn't make any changes unless she and i spoke about it.  She really feels that empowering the caregivers helps  (when they know what they are doing) because it is a 24 hour disease.  I think the RN may feel the need to clarify perhaps some things (especially being a new RN) and isn't quite comfortable with just talking to you, because changes and her role as a nurse can be very sticky and she is trying to play it safe, so I am not sure as to what her intentions are.  Are they to shut you out ? (which is not good) or are they just because she is trying to clarify, understand her role, the orders and do it by the book until she gets more comfortable in her role.  alot of times as a RN our moto is "if it isn't documented it isn't done" and perhaps she feels the need to approach the Dr (who, as an RN she takes her orders from) until she grasps how this entire disease is...because it is so very different than many other diseases.  So, I guess this doesn't help any because I just don't know what your school RN's intentions are.  If they are to just ignore you and what you feel your child needs, than no, it isn't okay and that needs to be addressed.  If it is because she feels comfortable approaching the Dr. but wants to include both your needs, then sure, call away. 


mpace89
by Member on Sep. 30, 2011 at 7:21 AM
It sounds like she wants to make changes to the way you treat his diabetes. In my opinion, that's not her call, that for you and your endo to decide. However, if it will make
The game easier, I'd call the endo myself, explain what she wants, make the decision, and then have her call the dr. Then he'll back you up to her and he gets to be the bad guy. Good luck!
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jen060208
by on Sep. 30, 2011 at 9:04 AM

My school nurse does talk to our endo. But I agree with jesica. My endo backs me up and says what I feel is right is what should be done. That nurse needs to understand that diabetes is convienent! I would go straight to the top on this one, this is a medical issue. If she screws up..

jen060208
by on Sep. 30, 2011 at 9:08 AM


Quoting mpace89:

It sounds like she wants to make changes to the way you treat his diabetes. In my opinion, that's not her call, that for you and your endo to decide. However, if it will make
The game easier, I'd call the endo myself, explain what she wants, make the decision, and then have her call the dr. Then he'll back you up to her and he gets to be the bad guy. Good luck!

Ok I agree with this! That nurse has NO right to be doing that!!!!! Who does she think she is?!

jesicaRN
by Member on Sep. 30, 2011 at 11:51 AM

 yeah...sounds like a huge communication issue.  The nurse absolutely does not need to first talk with the endo to help her job become a little easier.  What needs to happen is she needs to get with you and you both come to a conculusion.  You care for your child DAILY....you know your child.  A sliding scale is very common, so she probaby feels it should be protocol.  She needs to be informed and understand that with diabetes you have to learn to adjust, communicate and stay on your toes.  I understand how you are feeling, because in a sense it seems like she is disreguarding what you know, feel, and do when you are the front lines for your child.  I do think perhaps you consult with your endo on this entire situation and perhaps (if you endo is on top of things and willing) can communicate the need to listen to you.  Maybe the school nurse just needs to hear it from the endo for her to get it through her head??  That is a tough situation, I don't think I would be very nice about it...let's just say I am quite the bull dog when it has come to 'mistakes' being made when my child is at school.  Needless to say we have a new principal this year at our school in part because of me. The school staff (nurse especially) need to be held accountable for the care of your child during school hours, and what seems to be happening with your child is not acceptable at all.  Communication is so necessary and what the heck, the nurse needs to understand how to care for your child...not cool that she didn't know anything about diabetes.  Have you done a 504 or IEP meeting??? that seems necessary and if you have it sounds like a revision is in order...that way you have back up if they are not following the plan.  Hope some of this helps. Good luck.

Jadegirl1819
by Member on Sep. 30, 2011 at 2:11 PM

I did talk to the endo and she gave a flat out no for the sliding scales.  She said it's simple math and whoever is administering insulin should be able to do it.  The endo sent in a change for his IHP today and it confused the nurse so I gave up trying to explain it to her and just had her call the doctor.  It was really simple, too.  The IHP does say to follow my orders for the most part but she is going to want orders from the doc for everything.

It's like pulling teeth to get a 504 at our school.  Towards the end of the last school year in around April or so I emailed the principal asking what the process was to get a 504.  I was thinking about for this year.  It snowballed.  The nurse at the time got all offended and the principal kept repeatedly telling me that my son didn't qualify because it wasn't affecting his learning.  She set up a meeting and it was great because the district nurse, 504 cuordinator, and another administrative lady all agreed that he did qualify.  I don't think he actually got one written up last year, though.  It was close to the end of the year and I figured that I'd wait to push again this year.

I guess it is time for me to schedule a meeting.  They have been in school for almost a month now...


Quoting jesicaRN:

 yeah...sounds like a huge communication issue.  The nurse absolutely does not need to first talk with the endo to help her job become a little easier.  What needs to happen is she needs to get with you and you both come to a conculusion.  You care for your child DAILY....you know your child.  A sliding scale is very common, so she probaby feels it should be protocol.  She needs to be informed and understand that with diabetes you have to learn to adjust, communicate and stay on your toes.  I understand how you are feeling, because in a sense it seems like she is disreguarding what you know, feel, and do when you are the front lines for your child.  I do think perhaps you consult with your endo on this entire situation and perhaps (if you endo is on top of things and willing) can communicate the need to listen to you.  Maybe the school nurse just needs to hear it from the endo for her to get it through her head??  That is a tough situation, I don't think I would be very nice about it...let's just say I am quite the bull dog when it has come to 'mistakes' being made when my child is at school.  Needless to say we have a new principal this year at our school in part because of me. The school staff (nurse especially) need to be held accountable for the care of your child during school hours, and what seems to be happening with your child is not acceptable at all.  Communication is so necessary and what the heck, the nurse needs to understand how to care for your child...not cool that she didn't know anything about diabetes.  Have you done a 504 or IEP meeting??? that seems necessary and if you have it sounds like a revision is in order...that way you have back up if they are not following the plan.  Hope some of this helps. Good luck.


jesicaRN
by Member on Sep. 30, 2011 at 4:05 PM

 ugh!!!! frustrating!!! Contact ADA for help on 504 and descrimination if they continue to deny to do 504, because that is flat out descrimination.  Your child is protected under the disability act, so it is your legal right to set up a 504 to make sure all the needs are met in a timely manner.  I cannot believe that!!! Makes me irate!  Last year when my daughter was diagnosed the principal denied us a meeting...I pulled her out of school, wrote the school board, and contacted the superintendant of the district and pretty much said we do a IEP revision (she is in accelerated classes so she is under IEP instead of 504--but it will do same thing) or we can call it what it is and I contact ADA and have them help me locate a lawyer.  I documented EVERYTHING with dates, times, etc.  and we did do a revision, got a new principal this year and it has been soooooo much better.  I am sorry you are going through all of this.  It is hard enough sending our kids to school when we think they are safe, let alone, doing it with all these issues!!!

Heatherkansas
by Member on Sep. 30, 2011 at 9:37 PM

I wouldn't.  I don't think it's appropriate for the nurse to intervene with the endo.  You have to be involved in all the decisions. I doubt that the endo would talk to the nurse without your consent anyway.  But I think that it's wierd that she wants to get you out of the loop.  Sounds like you'll have to "educate" her.  Do you have a 504 plan?  Perhaps that could help get your son the care he needs.  She sounds a bit inflexible!  


Sorry.  Just read your earlier post about your difficulty in getting a 504 plan.  The recommendation to call ADA was a good one. They have a team of lawyers there who help with issues like this.  Email me off line if you like--I'm an employment lawyer--I do a great deal of ADA litigation in the employment setting, but I think it's pretty similar.  Good luck!  It's hard enough to send these kids off to school!  You don't need these headaches.   


AMG4
by Member on Oct. 3, 2011 at 5:56 PM

Our nurse does talk with the doctor but usually she talks to me first.  She went in to be trained by the doctor  at first but they didn't like each other much - so she always talks with me first.  But our doctor would tell her that the medical plan is the medical plan and has to be fallowed!  End of story no room for discussion!

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