Do you ever feel like diabetes rules your life and your family's life? My daughter is almost 7 months into this nightmare and I'm just so incredibly frustrated all the time. She's really doing pretty well, and we're so grateful for that, but the day to day drudgery of checking and checking and counting and counting, and constantly worrying has just completely worn me out--physically and emotionally. We got hit with a bad stomach bug and she was so terribly sick. We managed to keep her out of the hospital, but only just. Then she got some sort of respiratory virus and missed more school. Now, she has developed a skin allergy to the adhesive on her omnipod and she is completely miserable. I've worked with the pump rep to find some other products to protect her skin, but it's trial and error, and in the meantime, she is just so miserable. And I'm just so angry that she has to deal with this. She is NINE years old and it just isn't fair. And I feel like I can't give my son all the attention he needs because every spare minute that I'm not working seems to go into diabetes management. And I'm just so tired all the time. I'm a single mom, with a great relationship with my ex, but the kids live here and the nights all fall on my shoulders. And I just can't seem to find peace with this whole thing. When does the new normal become okay? I don't know how much longer I can sustain this "crisis mode."
Okay. I feel better. Nice to be able to write out what's crowding my mind. Thanks.
I'm 5 years into it. I feel like life revolved around diabetes and I guess my life will until he moves out of the house. For me, the first year was awful. Then it just suddenly became "normal". Things became habits so I just did them without thinking. I became more comfortable with handling situations so I didn't hit panic mode as easy.
I'm sorry you have had to deal with back to back illnesses. I hope things calm down.
I am right there with you. I am so stressed and so tired. Before my son was in the PICU we had major trouble keeping his sugar down - it seemed like no matter how much insulin he got it simply did not touch his sugar at all! Now that we are out of the hospital we can't keep his sugar up! I am talking 6 or 7 lows a day!! We get virtually NO sleep due to me waking him up to check his sugar two times before breakfast at 9 ( I wake him at 2 and 6 am) Thankfully his doctor just sent me some new doses.....never seen doses like this lol. His new doses are 1 unit per 30 carbs and BS-120/120 and 10 units of Lantus. She also changed the time of day that he gets his Lantus to 9am. I HOPE this allows us to start getting some sleep! I am like you and waiting for the happy medium of it all......sure hope we find it soon.
Every day of my life since 5/25/11 my life has been ruled by diabetes. My daughter is almost 36 months old and was diagnosed at 27 months. Since that time our entire life has been turned up side down. There is no such thing as a NORMAL day. Every day makes me scared to go to sleep at night for fear that I will wake up to my daughter being dead or so low I can't bring her back. I totally want the My Sentry system by mini med but cannot afford it :(
I am now 6 years into it and how i feel about it depends on the day. one day it is all i do and the next a simple routine! As they get older they deal with more of it themselves but i not sure it is ever easy! Different worries as they get older- sports, hormones etc. we started with her not even knowing numbers to read a meter and i was pregnant with her little sister - the baby was premature and i don't think i slept for a couple years with a new high needs baby and a newly diagnosed diabetic, 5 at the time and then the two older kids had none of my time at all! But we made it through and now 6 years later i can say i am more comfortable with her care - i won't say it is easy! But hang in there!!!! we are all here to helpand listen
-the night and sleep are hard and i can't imagine doing it myself - you are amazing !! about every two weeks i tell my husband it is your turn tonight i need some sleep tonight. but as he gets up to check her i can't sleep until he comes back to tell me a number so i may as well have done it myself! anyway - things do settle down with hard times in between - hang in there!
It doesn't get better...but you do! :) It becomes more routine. Nearly 1 1/2 years into it and it has just become routine. As for nights, don't we just sleep with one eye open!?! Doing nights alone would be hard! I am a mom of 4 (oldest is T1D and 11...youngest is 3 months) so i couldn't imagine doing nights by myself. I do most nights, but there are times when I just can't...and nudge hubbs to do it!
Illnesses can wear on you, and they are a challenge. I know everytime someone is sick and comes around I want to strangle them!!! I am not nice about that!!! I must say this fall has been easier than our first.
Hang in there. You got this, and you are doing a great job! I started a blog at http://www.journeyintotype1.wordpress.com/ (it is really informal) but has really be quite the outlet. You are not alone!!!
I know how you feel. My son Cory gets so little time with me because ben has always been sick..... I feel guilty all of the time. But Ben needs me. I do what I do to keep him health, happy, and ALIVE
Celiacs?
- Heatherkansas
on Jan. 26, 2012 at 9:41 PM