Ask an adult with Type 1

Replies:

• 
• by
  • bennysmama1009
  on Oct. 15, 2008 at 11:23 AM

• this is a GREAT idea!!
  

  
  

• 
• by
  • Satan71
  on Oct. 16, 2008 at 8:44 AM

• Thanks. thats a great idea!!

• 
• by
  • Satan71
  on Oct. 20, 2008 at 9:34 PM

• Do you use a pump to control your diabetes? I would like to know how you feel about having to have it on you all the time?

• 
• by
  • elwalters77
  on Oct. 21, 2008 at 8:27 AM

•  

  Quoting Satan71:
  
  

  Do you use a pump to control your diabetes? I would like to know how you feel about having to have it on you all the time?

  I do now.  I took injections for 5 years before finally deciding to go on the pump.  I was concerned with always having it on too, but they make all kinds of great accessories.  I have clip on pouches in all different colors to match my outfits and most of the time people don't even notice and if they did, it just looks like I have a cell phone or pager clip. 

  I take it off to shower.  I have no problems wearing it to bed, as long as I keep it in a place that won't be uncomfortable. 

  The only thing about wearing it that I don't like is that sometimes my tubing will slip out of my waistband and get caught on cabinet pulls and door handles.  Ouch! 

  Other than that, I LOVE the freedom the pump gives me and the increased control.  I will never go back to injections and I would recommend it to anyone!

   

  
  

  
  

  
  

  

  
  

  
  

  
  

  

• 
• by
  • Satan71
  on Oct. 21, 2008 at 8:56 AM

• Thank you for answering. I wanted Denni to have an Omnipod for the tubing reasons. I hope I can get it. if not ,then I will still go for the Ping. Its great being able to ask you things. thanks again.
  

  Quoting elwalters77:
  
  

   

  Quoting Satan71:
  
  

  Do you use a pump to control your diabetes? I would like to know how you feel about having to have it on you all the time?

  I do now.  I took injections for 5 years before finally deciding to go on the pump.  I was concerned with always having it on too, but they make all kinds of great accessories.  I have clip on pouches in all different colors to match my outfits and most of the time people don't even notice and if they did, it just looks like I have a cell phone or pager clip. 

  I take it off to shower.  I have no problems wearing it to bed, as long as I keep it in a place that won't be uncomfortable. 

  The only thing about wearing it that I don't like is that sometimes my tubing will slip out of my waistband and get caught on cabinet pulls and door handles.  Ouch! 

  Other than that, I LOVE the freedom the pump gives me and the increased control.  I will never go back to injections and I would recommend it to anyone!

  
  

• 
• by
  • scaputo8500
  on Oct. 21, 2008 at 9:22 AM

•  

  What a great idea! Welcome to this board!!!  :-)

  I have a question.   My brother, best friend, next door neighbor, and a friend I graduated with, not to mention my T1d, Alex are all on the pump. (I feel like the diabled one at meals....I have nothing to do while everyone is checking their sugar, adjusting pumps...lol...) Alex, my 14 year old was the oldest diagnosed at 11. So, these adults are bascially fed up with the disease, and are willing to be lab rats for a cure.

  Each of them have volunteered  for one trial or another. As an adult, what is your take on that...you can think for yourself, make wise desicions, decide if it is too risky...Alex is very anxious to try the "Cabbage Cure" . It sounds wonderful to me, and it appears to be harmless if it doesn't work. At the same time, there must be risks, because they are still studying it.

  You having the disease, I am sure you have more knowledge and research know-how than our children. Which trials/ cure researches are you the most interested in. Which one do you think is the safest that holds the  most promise?

   

  Thanks in advance,

  Shannan

• 
• by
  • Tcook75
  on Oct. 22, 2008 at 5:25 PM

• Even though you were diagnosed as an adult ( I actually have 2 dear friends who were also), would you be more apt to go with a stronger approach to a child vs the Sorry for myself  approach? With my daughter, whos 6, we did the pity party for the first few months, but then after that we basically told her, this is what it is and as much as we hate it and it isn't fair. BUT we have to deal with it. Sometimes though we just want to sit down and cry instead. How do you feel about it?

• 
• by
  • elwalters77
  on Oct. 22, 2008 at 6:58 PM

• 
  

  Quoting scaputo8500:
  
  

  
  

  What a great idea! Welcome to this board!!!  :-)

  I have a question.   My brother, best friend, next door neighbor, and a friend I graduated with, not to mention my T1d, Alex are all on the pump. (I feel like the diabled one at meals....I have nothing to do while everyone is checking their sugar, adjusting pumps...lol...) Alex, my 14 year old was the oldest diagnosed at 11. So, these adults are bascially fed up with the disease, and are willing to be lab rats for a cure.

  Each of them have volunteered  for one trial or another. As an adult, what is your take on that...you can think for yourself, make wise desicions, decide if it is too risky...Alex is very anxious to try the "Cabbage Cure" . It sounds wonderful to me, and it appears to be harmless if it doesn't work. At the same time, there must be risks, because they are still studying it.

  You having the disease, I am sure you have more knowledge and research know-how than our children. Which trials/ cure researches are you the most interested in. Which one do you think is the safest that holds the  most promise?

  
  

  Thanks in advance,

  Shannan

  Wow, I don't know anyone else with Type 1.  I hate when people dive right in and don't wait for me to finish testing and taking insulin. 

  I have never taken part in any clinical trials or studies, but I would like to.  I know my body pretty well and if my endocrinologist agreed with me being in a study and it was something I wanted to try, then I would probably do it if I could.  I have never heard of the Cabbage Cure.  I would have loved to tested the continuous glucose monitors, for one.  I'm hopeful that they will be just as standard in the future as blood glucose monitors are today.  It would be the closest to "normal" I might ever be, until they find a cure.

  I think you need to do your research and make sure all health care providers and family members agree.  If it's something everyone is comfortable with, I would try a trial.  You never know, it might be just the thing!  Good luck!
  

• 
• by
  • elwalters77
  on Oct. 22, 2008 at 7:33 PM

• 
  

  Quoting Tcook75:
  
  

  Even though you were diagnosed as an adult ( I actually have 2 dear friends who were also), would you be more apt to go with a stronger approach to a child vs the Sorry for myself  approach? With my daughter, whos 6, we did the pity party for the first few months, but then after that we basically told her, this is what it is and as much as we hate it and it isn't fair. BUT we have to deal with it. Sometimes though we just want to sit down and cry instead. How do you feel about it?

  I think you just have to go with it.  Show her how strong she is and how brave she is, how she can do what all the other kids do.  It's tough, and there are going to be days were you do want a pity party, and that's ok.  I've had diabetes for over 8 years now and I still have days where I cry out of frustration about how hard it can be and how unfair it is.  It helps to get it out, whether by crying, talking, journalling, or for her, maybe even making up a story or drawing a picture.  I think you just need to be open, honest and understanding and let her feelings guide you.  Not to say every day should be a pity party, but once it a while, it is what she might need, and that's ok.
  

• 
• by
  • eridawn
  on Oct. 22, 2008 at 7:40 PM

• my dh has type 1 too, diagnosed as a child. i joined this group to understand what it may have been like for him. and also to know what may happen if my boys develop it too.

  you have a great idea! the moms hear are amazing with everything they do

  ** little e and Bowie            

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