Pseudomonas?

[elliesmommy404]

DD has tested positive for pseudomonas and staph.  She had a swallow study today.  We have to thicken all her liquid due to aspiration.  Bronchial scope is scheduled soon.  Any tips on the Pseudomonas.  I'm not sure what it is or treatments?

[mommy2TZK]

 

psuedomonas is a bacterial infection. its sucks big time. usually they put them on a nebulized antibiotic called Tombramycin. if its bad enough they will do IV antibiotics. but i think it may also depend on age. 

[shelly43]

Hello,

Almost all of the cf kids get pseudomonas, the nurses have told me is almost impossible for the kids not to get it.  It's a bacteria that grows in standing water. You can get it from shopping carts and toy sand buckets, any standing water really, the list is enormous. The biggest med for this is the Tobi inhaled.  It's just a nebulized med you give for 28 days on 28 days off every 12 hours.  I would be more worried about the staph myself. My son has been on Tobi almost constantlysince he was 4 years old. It's hard to see your little one ill but this is just part of CF. You'll do the work and she will improve. If they do IV meds then think of it as a learning experience. I've learn ed to do them myself here at home so my son doesn't miss as much school.

God Bless and I hope she gets well soon, Shelly

[elliesmommy404]

Can a 7 month old do the breathing treatments?  Will she likely need to be hospitalized after the bronchial scope?

[AJsMommy619]

To you veteran CF moms...  How do I avoid my infant getting Pseudomonas?

Any other tips for someone new to this?

[trelyn]

Quoting elliesmommy404:

Can a 7 month old do the breathing treatments?  Will she likely need to be hospitalized after the bronchial scope?

yes, my son was 7 months when he first had a breathing treatment, although he wasn't diagnosed until he was 9 months. not sure about the hospitalization. but i would think it would be likely. when my son got pneumonia they kept him a few extra days to take precaution because of the cf. he had bronchitis last Christmas, but was not hospitalized(that was before he was diagnosed though)i think it depends on things at that moment wheather or not they will hospitalize.

[trelyn]

Quoting AJsMommy619:

To you veteran CF moms...  How do I avoid my infant getting Pseudomonas?

Any other tips for someone new to this?

i am not a veteran on this, been almost 11 months since we have been diagnosed. But i did ask about this when my son was in the hospital with pneumonia. thank god he didn't develop staph or pseudomonas, the doc said we were very lucky. he said because once you get it, they pretty much will alwasy have to fight it. like its always there and its a huge thing for .i was told there isnt much to do to prevent because it is everywhere. other than the obvious to remain proactive. dont take your kid around people who are sick, i keep my son out of daycare, away from smoke/smokers. continue to give your child vitamins chest pats and the necessary breathing treatments. thats what i was told. you just do what you can to keep your child the healthiest that you can. some of these ladies prolly know some more. take care

[shelly43]

Well my son wasn't  diagnosed until he was 3 and a half. He had pseudomonas pretty much from the first time they checked him for it. Hand cleanser is a big help, according to the nurses. I've tried to teach my son to avoid ill or coughing people and to avoid touching his mouth and nose, especially at stores. Think about all those wet grocery carts standing in the rain. Then wipe it down or cover the parts your little one can touch.  I make sure to dry every plate and cup and bowl. But honestly I don't know that it helps. It's just my personal fear. Seeing standing water (standing water = pseudomonas) on a plate or cup or the lip of a storage container ( think about your bottles or nipples), I wash all our dishes with a tablespoon of bleach also. The sanitizer option and drying option on dishwashers would probably help if you have it.   I have a microwave steamer that I use for his nebulizers and I'm sure it would kill anything on a baby bottle, but drying them thoroughly afterwards is most important. I've drilled holes in the bottom of all outside containers that might hold water. I feel better about pseudomonas and mosquitoes that way, lol It's everywhere so just keep using the hand sanitizer often.

My son had his first Bronchoscope in Aug of this year. It's was a out patient deal but of course he is 10 years old too. It's was painful for him but the doc had to add alot of fluid to his lungs to do it. He had a X Ray before we left  but because of the pain mostly. He is a trooper and generally doesn't complain, but the doc said it wasn't the normal procedure either because of the amount extra water she had to add, he developed pneumonia afterwards. If they want to keep your 7 month old afterwards? I would let them just to be on the safe side.

God Bless

[Desire1]

 

Your daughter is beautiful. Pseudonmonas is not that bad my son is 12 and was diagnosed when he was a week old. The pseudo comes and goes, Tobi is used to control it. My son's last culture did not have any pseudo on it and he has been growing it for at least a year.

[rayraysmom]

Quoting elliesmommy404:

Can a 7 month old do the breathing treatments?  Will she likely need to be hospitalized after the bronchial scope?

my son started breathin treatments at 1 month old and still does them . the hospital for the bronchial scope never had that so don't know good luck

[cfmom2008]

Hello all CF moms, My son was diagnoised at birth with CF. He did not come home from hospital till he was 6 months old. I kept him out of the spotlight of all the sickness and it really works. We had a sitter for him so he did not have to go to daycare and during the winter months i pretty much kept him in and out of the weather and the flu bugs. It really helps to do this. He is 17 now and has only been hospitalized one time when he was 14, for a 10 day stay. He is doing GREAT at this moment. Pseusomonas was detected in his last culture and they put him on antibotics by mouth. The scope was done on him when he was small and only takes only a little while. I do hav a word of advice for some people. We had lived in a trailer when he was smaller and the phymaldahyde that was in the walls of the trailer almost killed him. So PLEASE if you live in a trailer and you see signs of your child staying sick or getting sick alot and their coloring is not looking good, check into the trailer it could be the cause of their sickness.