dd getting sweat test thursday UPDATED

[mommy2xp]

I had my dd nov 25 and her newborn screen for cf came back abnormal.  dh and i are both carriers, we found out with my first baby this is now our third.  i know this doesn't mean she has it, but she's having the sweat test done thursday.   but if she does have it what are some questions you wish you would have asked in the beginning? or any advice you have for us now.  i really have no idea what to expect. 

She has one gene known to cause cf another gene is one that they are not sure if it causes it or not. they didn't get enough sweat from her on the sweat test.we go back in 6 months and once a year after to keep track of her as it could lead to cf symptoms. 

[trelyn]

i would say to stay calm. you can take in more information with a semiclear head. they will prolly tell you what you need to know, what to expect, etc. if the blood came back saying that she has both mutations, then they should tell you what mutations they are and how they can affect with each other. if not, then ask about that. the sweat test will only give you a, i think its a level of what i cant remember.the first time i went with my son, i got alot of info and statistics and my sons cf team is awesome! they will push that you HAVE to remain proactive about it, so make sure you ask what you can do enviroment wise for your baby. just stay calm and pray. i think it will all come to you as needed.