Hello, ok I know it's been a while. I hope everyone had a wonderful New Year to celebrate with there CFers..... Each day is a new one, be it bad or good, take them when you can.
So anyways for them who know me and them who don't. I have two children from my ex, and I got remarried and we had two children. It wasn't till the youngest was in the hospital for the 3rd time at the age of 18 months that we where told she has CF. Out of fear we got our then 2 almost 3 year old tested and found out he has it too.... It amazes me every day when they are doing well... Now ages 3 and 4 they both go to school and are doing great.
I posted last year that I wanted another baby..... I got alot of mix feedback... I was mostly upset over the feelings that some CF moms have towards more children with the risk.... I have to ask.... if you had known about CF would you not of had yours??? Well I'm not like that.... a life is a life no matter how long or short as long as it's a good one and lots of love.
Ether way they finally started the CF screening in newborn screening in the state of Michigan and I am so happy to say that on January 1st 2010 I gave birth to a beautiful healthy CF carrier.
Kyle Donald
LOL I went in for my IUD yesterday and found out number 6 is on the way!!! oops 
Loving mother and wouldn't have it any other way..... to...... Cali Pearl 7, Kris Patrick 5, Kody Scott 4(CF) Cira Olivia 3(CF) Kyle Donald 11 weeks..... and soon Cyla Dorothy or Kole Wesley
Wow! First off...congratulations! My hat is off to you for all the patience you must have with your children with and without CF involved! I LOVE your attitude about more children and I have nothing but the utmost respect for you and your decisions! My husband and I have one son, Brady, who is 17 months old has CF...he was diagnosed prenatally, so we did all the research we could prior to him being born. You can never be fully prepared though...with any child at that!
Congratulations and have a wonderful week!
I'm not a good one to ask. I have always seen myself with a large family and by golly if I'm going to let CF prevent that. It also doesn't help when DD doesn't have it real bad because of DH's mutation she has. So as for right now I'm not having to worry with enzymes or vest treatments.
A life without enzymes or vest treatments I wouldn't know what to do.. LOL Your very lucky!!! My 3 and 4 year old had there yearly test checkups done last Friday and the remark the Doc said about my 4 year olds lung x-ray was... "I wish all our CFers has lungs like this... it would make the job easier." I was so happy and excited to see that the hard work day in and day out really pays off... And to top it off my 3 year olds lungs have improved 50% sence her x-ray last year... My next step is I have a CVS April 22 to see if baby number 6.. (I'm due in Nov) has CF or not.... Either way... love is love and a child is a life regardless.
I live by this....... If CF dosen't stop my child.... then why should it stop me.
What do I need to know to be a good advocate for my son?
- mommyOfours
on Mar. 18, 2010 at 8:27 AM