Floating poop

[elliesmommy404]

I have a potty trained 2yr old, she's been fully potty trained for several months. BTW, she isn't on any enzymes or anything for her CF. She doesn't have problems at this point in her life. I didn't pay attention to her poop, if it floated or was sinkers. But when I realize I should keep an eye on it, it was about 50/50. The same BM some would float and some would sink even. It has more and more switched to about 90% floaters and 10% sinkers. She occassionally has poop accidents and poops a lot. She goes about 4 times a day on any given day. The more she goes the more she complains of her stomach hurting. Last night she had accidental BM's on herself and was crying. When I asked what was hurting she rubbed her belly. 

The nurse practioner at the CF clinic told me if her poop starts floating more than sinking to let them know. I'm going to call them, but I'm just wondering if this sounds like typical CF problems? Her appetite is increasing, but she's nearly 3, so I'm sure a growth spurt could be happening. Then again she hasn't gained weight since the increase in appetite. No weight loss either. 

Does this sound like my almost 3yr old is having complications from her CF. 

[darbyakeep45]

I would say so to be honest...it sounds like the CF Clinic needs to see her in my opinion...she may need to be put on enzymes...surprised she's not on them already to be honest.  What gene mutation is she?  Is she pancreatic insufficient?

[elliesmommy404]

Quoting darbyakeep45:

I would say so to be honest...it sounds like the CF Clinic needs to see her in my opinion...she may need to be put on enzymes...surprised she's not on them already to be honest.  What gene mutation is she?  Is she pancreatic insufficient?

She is Delta F508 and R117H 7t. Only when the R117H is paired with 5t does it look like "typical CF, but its 7t. So far she has been relatively assymptomatic, which is to be expected. They really aren't sure how long this will be the case so they continue to see her ever so often. Her sweat test is borderline, but the latest they were unable to get enough sweat. They expect that to change at some point probably around teenage/young adult years. She did a stool sample when she was a baby, little baby and all was well then. I don't guess she is pancreatic insufficient, seeing as they aren't treating her for it yet. When I told them about noticing the floaters they said to increase her fat, which I question. I guess I will call them on Monday to see if they can see us before her scheduled appointment in March. Its not often, maybe once every couple weeks that she cries with stomach pain. Based on her mutations and what they have said I feel like she is a ticking time bomb. We have no clue how long things will be smooth sailing for us. She has tested positive once for psuedomonas and had to have a bronchoscope. Sometimes I look at her and hold her and just can't believe that my baby has CF, something that could one day be so cruel to her. The possibilities break my heart and scares me. 

[mommy2xp]

I believe those are the same genes my 2 yr old, I would have to check to be 100% sure. She just recently started having poo issues as well. We just saw the CF dr on Tuesday and they sent off a stool sample.  It sounds to me like she needs to be seen, ask when you call if you need to save some poo for them. It's much easier to just save it that day and put in a ziploc bag than try to get one out of her at the drs office. Good luck and let us know what they say!