How did you handle your son getting out on his on and trusting that he takes all his meds and does his treatments without you there to push him on? I am terrified that when he gets on his on he will put this all aside and because of that I will lose him. Any advise PLEASE.
Hello,
My son is just going to turn 11, I understand your fears only too well. I'm still kicking around the idea of seeing a counselor to help guide him through this. But mostly I think the hard part is that right now he is doing the single minded preteen boy thing. He hears nothing and is less responsible now then he was at age 6. Can't find the laundry basket or kitchen sink, ect....... Let alone remember to switch nebulizer cups or take pills. I find myself repeating... "It's the same as the last 8 years...yes, you have to take pills to eat"....or "There have always been this many nebulizers for years...... No your not done after just one!"
I know this is just part of the age he is and part of me is happy he can and is doing this normal preteen boy stuff. Part of me is scared senseless to let him go on his own and as a young adult. Do we have to let them move out? lol I need him to prove he can do as he needs to without me standing over him. How do you teach that? lol I have recently started to remind him that if he wants me to think of him as somebody who can drive a car in a few years, then he had better step up and prove to me he can follow instructions without me standing over him and be responsible. Since his sister is getting her licence in a few weeks this makes him stop and think.... I hope, lol
His father (my Ex) let's him skip meds and doesn't push the issue so it's up to me to teach him this. Have any of you found counseling to be helpful?
God Bless,
I have a 10 fixing to be 11 year with CF, I don't come in much because like another mom said most of the parents in here are younger dealing with little CF'ers. But yeah it scares the heck out of me to know next year in middle school Caleb will basically be responsible for his own meds. the older he gets the more scared I become. He hates his meds and anything to do with having CF, so it scares me he will stop. I seen a cousin do it and I am scared I will watch a son do the samething.
My Boys
Hello,
I've heard of the same sort of thing happening. Or even worse a CFer taking up smoking, Yikes! I'm not too worried about middle school for my son as far as meds go. No one is allowed to take any pill, not even midol, to school here. All meds have to be given through the school nurse. You can be expelled for taking any pill to school. It's strict but understandable in this day and age. It takes a load off of my mind for now too, lol
Maybe your school will have a change of policy? Have a Merry Christmas!
My son is 14 and he's started fighting treatments and meds. Getting him to eat lunch at school and take his enzymes has been a chore. He gets upset a lot because of CF, It seems he hit 13 and all compliant behavior towards CF went down hill. =) Gotta love teenagers.
What do I need to know to be a good advocate for my son?
- cfmom2008
on Jan. 25, 2008 at 11:21 AM