Is it hard having multiple children with CF?

[heather8406]

hi there moms! i was just wonderin for those moms who have more than one child wit CF if your day to day schedule is any harder than when you had only one child to get everything done? my husband and i are thinking about having another child but we have a busy schedule with just our daughter so we were wondering if it's twice as hectic with another child?

[mommyOfours]

I can answer I can answer!!! LOL My youngest (of 4) was diagnosed only a month before her older brother.... so I never really just had one to take care of, it's always been the two and man is it simple.... One gets this and the other gets it... Meds are always at the same time and they play with each other during PT, Vest, and breathing treatments... In fact I have them in the same preschool class they are that close... (not only in age.) I think it's nice for them to have each other and to handle things together... Once one gets something the other has it. Once one gets rid of something the other dose... (Latest test shows we finally after a 8 month fight got rid of the staph in there lungs.) Now I'm 23 weeks pregers and I have been bashed up one wall and down another by some people in CF groups... The ones who don't understand that a baby has a 25% chance of having CF, 25% of not, and 50% of just being a carrier... Honestly your a carrier, I am, both our husbands are if we have CF kids already... I don't think anything is wrong if I gave birth to another carrier. (my oldest son is a carrier and my oldest daughter has no gean. Both kids by a previous marriage.)  I honestly am fine giving birth to another CFer as well... I pray I don't but if it happens, it happens... Atlest I gave the gift of life no matter how long it is. I congrats you and your husband for thinking about giving your child a sibling.... CF or no CF.

If CF dosen't stop your child.... why should it stop you??

[heather8406]

thank you so much for replying to my post! this makes me feel so much better about havin another child. i know what u mean by ppl bashing you b/c that's part of the reason i was so worried about havin another, ppl always tell me why bring another child into the world that is just gonna be sick and i think about that but u have made me see more clear now that as long as the child is loved and taken care of by his/her parents that's all that matters. so thank you so much you have helped me more than u know. god bless and have a great nite!

[momof3beans]

 I have 2 boys with CF, 11 and 13. Micah was diagnosed while I was pregnant with Elijah. For me its only harder when their sick. Organization and routine is very important when there is more then one CFer in the house. When one goes in the hospital both boys go in. This last tune up was the hardest for sure.Elijah grew MRSA and Micah didn't so we had to seperate the boys in 2 different rooms. I felt like a ping pong ball between the two rooms at the hospital.

   My husband is deployed for a year which makes it twice as hard, but I don't loose my mind and the boys feedings and treatments continue on. It's very doable. Having another babie is a personal choice and anyone that feels the right to get in your free space doesn't deserve that time of thought. Enjoy a new life and if there is CF all will work out fine.

[mylittlesecret]

I just wanna say thank you to thoses who responded to her post , it was a comfort to me also , Its helping me deal with feeling I had of guilt for being pregnant again after havibng our daughter pass away from cf ... people have felt that we were crazy and selfish for wanting another child after dealing with cf once .

[angelwaddle]

i HAVE TWO WITH CF. PEOPLE GIVE ME A HARD TIME ABOUT HAVING ANOTHER CHILD KNOWING THEY COULD HAVE CF BUT I DON'T CARE I LOVE MY CHILDREN ALOT AND THEY ARE TAKEN CARE OF. I DO THEIR TREATMENTS TOGETHER SO IT ISN'T REALLY THAT HARD PLUS I WORK.

[angelique142]

I just had my second son and he does not have CF but I had a lot of guilt during my pregnancy so I know how you are feeling.  I figured if god wanted me to have another child with CF then thats what I would get.  I am going through the whole process again because I still want another baby, (in a few years.) People have children with illnesses all the time and then have another one. It is a personal decision and I cant imagine my life without my second baby. I am so grateful that I took the chance.  Best Wishes!!

[sharden09]

I do not have two but my freind has twins with it. and its hard she says . when one get sick they both do. yes the meds go at the same time but u might have same doctors appointments but its so hard.  Im not putting you down or anything if u want another child. But if you have one child and you know she/he has CF already why would you take the chance of putting another child through that and have double heart ache if and when its their time to pass. I always wonder why parents do that. I know if you did not know one child had CF and you have another one and then find out but why do it when you know.

Its your choice and god be with you.

[PinkChevelle]

It sucks that most of us are faced with this decision. To have another baby..or not! I hate the idea of letting CF stop me from having another baby..because i really would LOVE more children. My only concern is the health of my first son. The only reason, other then financially, that we're not having another one right now is because I want to focus only on my son right now. If we do have another Cf child..I would want to focus on them as well..since the first few years are the toughest. I think we've finally decided that we're going to have another baby once Kaeden is old enough to start doing more on his own. We want him to gain a sense of independance before we have to focus on a new baby.

Honestly, if it weren't for the advice and support of parents with 2 or more CF kids, we wouldn't have decided the way we did. But as a previous posters said.."If CF doesn't stop our children, why should it stop us?" i love it :)