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About Mom's with TEF (Trachealesophageal Fistula) babies

A tracheoesophageal fistula (TEF) is a congenital or acquired communication between the trachea and esophagus. TEFs often lead to severe and fatal pulmonary complications. Approximately 17-70% of children with TEFs have associated developmental anomalies. These anomalies include Down syndrome, duodenal atresia, and cardiovascular defects. TEFs are a common congenital anomaly with an incidence of 1 case in 2000-4000 live births. Acquired TEFs are quite rare, and incidence rates have not been well documented. Surgical and perioperative management of congenital TEFs have improved significantly. Survival rates of 100% can be achieved in infants who do not have severe associated congenital anomalies.

My son Thomas and my younger sister were both born with this defect. They are survivors with no known side effects. I wanted to form this group to help women going through this for the first time understand in laymen's terms what they are dealing with, and what they can expect after their baby is sent home from the NICU.

Group Owner: TXmom0f4 Send a Message

You can always find this group with the following URL:
http://www.cafemom.com/group/TracheoesophagealFistula