Infantile Spasms ( Seizures) Group

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Infantile Spasms ( Seizures)

About Infantile Spasms ( Seizures)

Hi, I am a single mother of a wonderful little boy that i recently found out he was having seizures. What i saw i thought they were cold chills. And everyone i talked to said that it is nothing. But in my heart i knew something more was going on. And guess what I was right. The doctors at... MORE

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General Discussion

Title	Replies	Last Reply
6 mo old with IS. New to group.. questions.. need support! by jen26dylan Mar. 22, 2010 at 7:47 PM	11	Jul. 6, 2010 at 8:11 PM by SCRAGIRL31
hello I just joined by SCRAGIRL31 Jul. 6, 2010 at 8:02 PM	0	Be the first to reply to this post. »
Other mental issues? by froggyluv81 Jun. 14, 2010 at 10:51 PM	1	Jun. 23, 2010 at 3:01 PM by Elyssa414
Audrey's IS came back by asherraifsmom Apr. 30, 2010 at 10:21 AM	2	Jun. 1, 2010 at 7:42 PM by queenamy
Anyone had to use an NG tube to administer meds? by asherraifsmom May. 12, 2010 at 12:04 PM	0	Be the first to reply to this post. »
ONE MONTH!!!!!! (piog) by Elyssa414 Feb. 14, 2010 at 9:09 AM	6	May. 6, 2010 at 2:10 PM by Asexton1214
Kinda scared, kinda in denial, kinda numb... by asherraifsmom Apr. 25, 2010 at 5:09 PM	3	Apr. 28, 2010 at 7:29 AM by asherraifsmom
Question for moms who've dealt with Topamax, and not eating. by asherraifsmom Apr. 17, 2010 at 1:22 PM	3	Apr. 25, 2010 at 10:37 AM by jodyjodyjody
For anyone whose kids are on B6 (pyridoxine) or considering it... by asherraifsmom Apr. 24, 2010 at 3:52 PM	1	Apr. 24, 2010 at 6:15 PM by Elyssa414
he started doing something new by zoenlandonsmom Apr. 14, 2010 at 11:46 PM	1	Apr. 17, 2010 at 1:13 PM by asherraifsmom
maybe you all can help by zoenlandonsmom Apr. 7, 2010 at 5:05 AM	5	Apr. 11, 2010 at 11:37 PM by zoenlandonsmom
Goodbye, ACTH! by asherraifsmom Apr. 8, 2010 at 9:32 AM	0	Be the first to reply to this post. »
LGS.... by iluvmyguardsman Apr. 3, 2010 at 2:40 AM	2	Apr. 8, 2010 at 9:18 AM by asherraifsmom
Almost off of ACTH! (and the host of meds/treatments that go with it) by asherraifsmom Mar. 30, 2010 at 8:29 AM	1	Apr. 8, 2010 at 12:47 AM by Elyssa414
How many people here have kids with TSC? by asherraifsmom Mar. 10, 2010 at 10:48 AM	0	Be the first to reply to this post. »
Keppra and Topamax?? by Asexton1214 Aug. 11, 2009 at 2:48 PM	10	Feb. 20, 2010 at 10:33 AM by Asexton1214
Weaning off ACTH, and long term Topamax?? by asherraifsmom Feb. 9, 2010 at 10:24 AM	2	Feb. 14, 2010 at 10:15 AM by asherraifsmom
Scared, questions, intro... by asherraifsmom Jan. 26, 2010 at 6:57 AM	15	Feb. 9, 2010 at 10:12 AM by asherraifsmom
? on ACTH by Asexton1214 Oct. 27, 2009 at 5:04 PM	8	Dec. 17, 2009 at 11:52 PM by Elyssa414
(UPDATED with better video) Can someone take a look at this video of my son and tell me what you think? by AshleyBDG Nov. 25, 2009 at 10:19 AM	7	Dec. 4, 2009 at 9:31 PM by AshleyBDG

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