I am so stressed out *** UPDATE - NO BETTER!!
Ok so I finally get my dd started in OT - 3 months, 2 Rehab Ceners, and 2 therapist later. Now after only 3 sessions the therapist is freaking telling me that she doesn't know how long they will need to do therapy because dd is making "great progress". She is only seeing her 1 hour a week, how on earth can she possibly say this. She's working one on one with her with no other distractions. Her teacher is telling me she is still stuggling to do things so why does the therapist feel this way. I told the therapist what the teacher has said and she acted so surprised by it. I was so excited to get the therapy actually started and now it looks like I will have to fight to keep it going. So now I not only have to fight to keep this therapy going, but I also have to start fighting the school corporation to get her help there too. Does this battle ever end or at least get easier?
Ok so my dd has been in school since August 12th. I have talked to the teacher, counselor, and nurse. I've told them we want and have orders to get OT, ST, and PT evals done thru the school corporation. The nurse took copies of the orders and was sending them to the Special Education office since they are the one's in charge of getting these done. Well I haven't heard anything and neither has the teacher, so I called thie SE office and they told me they don't do these for school age children, and I needed to talk to this other lady but she was at lunch and I would need to try her later. So I called her and she told me nothing - she was unable to help and told me I needed to talk to the Therapy dept. So I talk to them - they inform me they don't work from Dr orders and they couldn't help me. She asked me if I had a 504 or IEP in place, I told her I was told I couldn't get those until the evals were done. She told me I would need to speak with the coordinator for our school and gave me her number to call. So I called her and will have to wait til morning to see if she calls me back.
It just seems like the right hand doesn't know what the left is doing. It shouldn't be this much of a struggle to get our kids the help they need. Shelby is doing ok in school right now, but they are basically reviewing things that were done in preschool right now. I'm afraid in a few weeks when the review is over and the next level of work starts, she is going to be lost and very frustrated.
I am thankful that I have her in OT right now, but I don't know how much longer this will last. They seem to think she is progressing well by their standards. Which is frustrating too, because I still see her struggling so much.
Am I wrong - I don't think it should be this hard to get help for our kids.