I wanted to let everyone know that I sent a message to the people that run this site and asked how to add a charity and expained about mastocytosis, and they sent me a message back last night saying that they change their charities about once a year and that when the time comes they will put mastocytosis reseach up for consideration for a chairty!!! I was so shocked to receive a response much less one saying that it would be up for consideration!!! :) Made me want to cry!!!!!
The band, Five for Fighting, is generously donating $0.49 to Autism Speaks for
*each time* the video is viewed. The funding goes toward research studies to
help find a cure. When you have a moment, please visit the link below to watch
the video and pass it along to your friends and family. They are aiming for
10,000 hits, but hopefully we can help them to surpass this goal.
http://www.whatkindofworlddoyouwant.com/videos/view/id/408214
Rare Disease Day Feb. 28, 2009
- del_bug
on Jan. 16, 2008 at 10:22 AM