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I need some info please.....

Posted by on Feb. 11, 2010 at 8:48 PM
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Hi, my name is Sarah, I am studying to become a speech pathologist. One of my assignment is to take part in a discussion about deafness. I would love to get your opinons, or thoughts about using hearing aids or cochlear implants. I am also working with a child right now how has hearing aids, so any information I can get would be great. Thank you in advance.

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by on Feb. 11, 2010 at 8:48 PM
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Replies (1-10):
aramat
by Member on Feb. 12, 2010 at 2:14 PM

did you have specific questions??? if so ask away on this thread .

sarahmcg
by New Member on Feb. 12, 2010 at 4:54 PM

I would like to know if you or your child wears hearing aids or has a cochlear implant. If so, which one and how do you like them. I would also like to know how  you came to the decision on what type of aid to use or not use. If you have any other comments or questions please post them.

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Vashtiruescode3
by on Feb. 12, 2010 at 5:29 PM


Quoting sarahmcg:

I would like to know if you or your child wears hearing aids or has a cochlear implant. If so, which one and how do you like them. I would also like to know how  you came to the decision on what type of aid to use or not use. If you have any other comments or questions please post them.

My daughter is 20 months old. She was diagnosed with severe/profound deafness when she was 15 months old. My husband and I knew right away that we wanted to give her the option of hearing, with the choice to hear or not hear when she is older and able to understand herself.

She started wearing her trial hearing aids in December, and yesterday (2.11.10), she was bilaterally implanted with Cochlear America's Nucleus 5.

If you have other parents in the future who are choosing the implants for their children, tell them that the anxiety and fear will last as long as they let it get to them. I was so scared yesterday, but the doctor we chose for our baby girl, is the best of the best in the country, so I told myself that I have nothing to be afraid of because she is with the best doctor in the world.

If you believe in your doctors, you will take a huge weight off your shoulders. The doctors understand that that baby is your life. 

If you want, you can add me as a friend here or on facebook, and I can keep you updated on my daughters progress. If you have any questions from future parents about the process, you can ask me :)



sarahmcg
by New Member on Feb. 12, 2010 at 5:47 PM

Thank you so much for sharing your story. I will add you. I would love to get updates. Have you spoken with a speech pathologist yet?

ssippi
by New Member on Feb. 13, 2010 at 11:33 AM

You are more than welcome to read my journal posts on here and add me as a friend as well.  My little man is severe/profound deaf.  He wasn't diagnosed until he was 2 years old.  He wears one hearing aid in his left ear and none in his right.  We keep going back and forth about the CI.  The road to getting a CI hasn't been an easy one for any of us.  When push came to shove, we backed off of the CI.  And has time has went on Gunner has learned so much not only in sign but also in verbal speech.  They told me he would never talk and I'll be dammed if in the last year his verbal vocabulary has jumped to about 30 verbally spoken words and phrases!

brolyx429
by New Member on Feb. 14, 2010 at 9:47 AM

I have three children, my oldest daughter has completely normal hearing range, while my two youngest are both severely deaf. My son Calyx, is 24 months and was diagnosed at birth with severe hearing loss, he is deaf completely in his left ear and has an 80 db range in his right. My baby Phoenix was born in july and was diagnosed at birth as well, she is deaf (completely) in her right ear and range of 50 in her left. It took me a year before we finally got Calyxs hearing aids due to insurance and manufacturer problems. They tell me Feeny will be different easier if you will to get her hearing aids in faster but who knows. They are both in speech therapy twice a week and see a developmental specialist 2 times a month. We are currently working with signing and hopefully we will see how well this is going to work. Therapy just started in August (again due to some money and insurance issues). Having one hearing and two impaired has been a wonderful little challenge. My oldest has realized that baby brother and sister can't hear so she likes to start this "I can't hear you mommy put my earrings in" thinking I will fall for it but what else would you expect from a 4 year old haha. I think language pathology is a rewarding career to look into. I would also love to go into it but there isn't any schools close enough and unfortunately with a full time job and three under 4 is a little tough to look into. Good luck for you!

sarahmcg
by New Member on Feb. 15, 2010 at 3:54 PM

That is so amazing, I will add you as well. Does he see a speech pathologist? How old is he now?

Quoting ssippi:

You are more than welcome to read my journal posts on here and add me as a friend as well.  My little man is severe/profound deaf.  He wasn't diagnosed until he was 2 years old.  He wears one hearing aid in his left ear and none in his right.  We keep going back and forth about the CI.  The road to getting a CI hasn't been an easy one for any of us.  When push came to shove, we backed off of the CI.  And has time has went on Gunner has learned so much not only in sign but also in verbal speech.  They told me he would never talk and I'll be dammed if in the last year his verbal vocabulary has jumped to about 30 verbally spoken words and phrases!


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sarahmcg
by New Member on Feb. 15, 2010 at 3:59 PM

Thank you so much, and yes I bet 3 under 4 in a handful. I have 3 kids but they are more spread out. I love the field that I am in. I cant wait to graduate so I can start working. So is your oldest daughter signing as well?

Quoting brolyx429:

I have three children, my oldest daughter has completely normal hearing range, while my two youngest are both severely deaf. My son Calyx, is 24 months and was diagnosed at birth with severe hearing loss, he is deaf completely in his left ear and has an 80 db range in his right. My baby Phoenix was born in july and was diagnosed at birth as well, she is deaf (completely) in her right ear and range of 50 in her left. It took me a year before we finally got Calyxs hearing aids due to insurance and manufacturer problems. They tell me Feeny will be different easier if you will to get her hearing aids in faster but who knows. They are both in speech therapy twice a week and see a developmental specialist 2 times a month. We are currently working with signing and hopefully we will see how well this is going to work. Therapy just started in August (again due to some money and insurance issues). Having one hearing and two impaired has been a wonderful little challenge. My oldest has realized that baby brother and sister can't hear so she likes to start this "I can't hear you mommy put my earrings in" thinking I will fall for it but what else would you expect from a 4 year old haha. I think language pathology is a rewarding career to look into. I would also love to go into it but there isn't any schools close enough and unfortunately with a full time job and three under 4 is a little tough to look into. Good luck for you!


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brolyx429
by New Member on Feb. 20, 2010 at 12:14 PM

My oldest is also learning to sign with us. Like I said her hearing is perfect other than when she decides she can't but having her around has been a big biiiiggg help. She and her little brother have their own special little connection I really feel that if it weren't for her helping him and showing him he would learn nothing. She got him to do the sign for dirty the other day it was fantastic. She goes to school and teaches all of her little friends as well. Her teacher told me the other day that Brodie (that is my oldest) has been teaching her signs so she would know how to talk to her baby brother when she would have him in class in a few years. We both thought that was just amazing. We just found out yesterday (after 3 hours at the audiologist) that not only is the baby going to have to have hearing aides she is now going to have to have tubes as well. I got super excited cuz I figured so she can hear if we fix this and of course the doc was like well no but it will help a little. But oh well. Brodie is already starting with her (phoenix) as well. She sits with her and looks at the books and pictures and shows her. keep that in mind when you do studies and sessions and stuff :-)

sarahmcg
by New Member on Feb. 21, 2010 at 1:23 AM

That is so wonderful. With having 3 kids of my own, I know how the younger kids look up to the older ones. It so great that she is willing to help with the younger ones. With the clients we see at my school, we see a huge improvement with the children who get extra help at home, either from mom, dad, or sibling.

I really think that sign language (at least the basic signs) should be taught in school. Some teachers here will do this already. When my friends little girl was in 2nd grade her teacher taught the whole class a bunch of signs and she came home and taught them to everyone else.

Thank you so much.

Quoting brolyx429:

My oldest is also learning to sign with us. Like I said her hearing is perfect other than when she decides she can't but having her around has been a big biiiiggg help. She and her little brother have their own special little connection I really feel that if it weren't for her helping him and showing him he would learn nothing. She got him to do the sign for dirty the other day it was fantastic. She goes to school and teaches all of her little friends as well. Her teacher told me the other day that Brodie (that is my oldest) has been teaching her signs so she would know how to talk to her baby brother when she would have him in class in a few years. We both thought that was just amazing. We just found out yesterday (after 3 hours at the audiologist) that not only is the baby going to have to have hearing aides she is now going to have to have tubes as well. I got super excited cuz I figured so she can hear if we fix this and of course the doc was like well no but it will help a little. But oh well. Brodie is already starting with her (phoenix) as well. She sits with her and looks at the books and pictures and shows her. keep that in mind when you do studies and sessions and stuff :-)


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