Let's fill up our links page!

[mamatoheartbaby]

I know I have an amazing list of heart/chd/support links in my favorites, what about all of you. Lets start posting our favorite links to share with others.

Koren

[UmmKhalil]

Great idea Koren!

Here are a few that I've found very beneficial:


http://www.congenitalheartdefects.com/index.html 
(Tons of info, I'm sure everyone else has seen it to, but it's great)

http://tchin.org/
(Another regular, but great info)

http://www.achaheart.org/index.php
(Really good for adults w/CHD)

http://www.echocharity.org.uk/
(Good info, lots of fetal info)

http://www.kidshealth.org/parent/medical/heart/congenital_heart_defects.html
(A good run down of the most common CHDs)

This is just a few, but I'm sure there are more out there!!
Hope to see lots of new links posted!!! :)

-Nicole
Mommy to Khalil, 2 years old, TOF w/ PA...BT Shunt 9.19.05 Repair 3.16.06

[JNMMOM]

www.itsmyheart.org 
Support group based in Houston, TX.  New chapters sprouting up across the country, too.

[Heather1212]

Well this site isn't really informational, but it's a group that makes CHD quilts with blocks on each quilt for you or your child's name and info to help raise CHD awareness.  You can submit your info and they will make the block for you, or there's instructions on how to make your own and send it to them.


http://www.chdquilt.org/

[4sophiesheart]

Informative website on CHD’s

http://www.pted.org/

and a great support organization- Over 24 chapters- Look for one near you!
Mended Little Hearts
http://www.mendedhearts.org/mlh/frame-mlh.htm

[nmarselle]

http://savingtinyhearts.org Hi All It's been awhile since I have been on here but I want to share a site that is an Organization called "Saving Tiny Heats" it was started by a mom of a CHD baby to raise much needed funding for research and unlike most organizations, 100% of money raised goes to the cause! There are no employees getting paychecks. I am sure as many of you may have been told as we were, that had our son been born 10 years earlier he would not have lived. So we have to thank those who donated to funding heart research then for the lives of our children Now! Please take a moment to check it out and pass it on! http://savingtinyhearts.org Thanks, Nicole

[pssst]

www.chifund.org  is a link to our fundraising/support group here in San Diego, California.

http://chifund.blogspot.com/  this is the link to my blog where I have posted a video of my 15 yr old CHD survior(single ventricle, common atrium, dextrocardia,post modified fontan) Talking about the hospital, the surgeries and his thoughts.

[somer25]

WOW!!! I loved the video. My daughter is four and people always comment on how nice it is to see an "older child" surviving complex CHD. She's ONLY 4!!! That worries me a little. Now I get to say, It's nice to see a child who is older than mine who is doing well. Thanks for the encouragement. Thank you sooo much for sharing.

[luckyvtmama]

Hi all, I am new to this group but my son was born only 7 months ago so I am just getting over the crazy research stage :) I have a ton of links but here a couple of my favorites;

www.childrensheartfoundation.org

They provide hundreds of thousands of dollars each year just for CHD research, that is the main function of their organization!

www.learnaboutchd.blogspot.com 

lots of info and some great articles