Hi my name is Malena and my heart baby is Demetri, this is our story of finding out he has CHD.
I
am a SAHM to Jericho 5 and Demetri 1 year on 10-10. I have older
children who live outside the home and also lost two babies to SIDS.We
were surprised to learn I was pregnant in Feb 2010. I immediately began
taking prenatles and getting prenatle care. At my first visit I had a
pap smear and learned I had bacterial vaginos. Treatment started with
flagyl,however an allergic reacion and my other drug allergies caused me
to me changed to clyndomyicin. This cleared it up and my pregnacy
progresse normally.
Around 16 weeks I had the multi marker screening and it showed we were at high risk for Downs Syndrome (this was actually lowerafter the screening was factored with my age, 41, than before) and Trisomy 18 if I recall correctly it was like 1:16. At around 18 weeks I had a level 2 US to look for soft markers for either. Everything looked fine. When it was time I got mt RhoGam shot.
4
days past due I delivered Demetri. There ws meconium staining in his
bag of water but they suctioned him right away and was immediately
given to me. He brestfeeds exclusively. Has had a few ear infections
and bronchiolitus twice. He was on an apnea-bradycardia monitor for
several months at my request due to the history of SIDS. He was tested
and found negative fo CF. Has had two chest x-rays one which showed a
mild pneumonia. He even wore a 24 hour Holter Monitor for two days. He
has grown well and is on mark with his milestones.
A couple months ago the ped heard a murmur and said to have his cardiologist check it at his next visit. This was our 2nd with him and the day after that dr visit. The pedcard heard the murmer as well and tried to do an ekg. Demetri was very wiggky so it was decided we should get a sedated echo done at PCMC. That was 9/20. On 9/21 I heard back from the pedcard. Demetri has a bicuspid aortic valve, thickening of the aortic valve and Coarctation of the aorta.
I of course have tons of questions. I hope I can find answers here.
Malena
Welcome!!! I'm new to the group also, but a veteran to heart defects. I had surgery as a child, aortic valve stenosis. My son had Tetrology of Fallot and surgery at 8 weeks. I'll answer anything I can!!!
amnio test came back
- Jerichos_Mommy
on Oct. 1, 2011 at 5:49 PM