Transposition of the great vessels... anyone have experience?

[phisherally]

I am 24 weeks pregnant and one of my girls was diagnosed with Transposition of the Great Vessels. 

I'm wondering if anyone here has experience in the surgery or anything?

[phisherally]

Bump

[ha16335]

My daughter was born with Transposition. At one week of age she had her surgery at Childrens Hospital in Pittsburgh. Every surgery is different but as heart moms we always worry about the worst, her surgery lasted a gruling 13 hours, it was the LONGEST day of my life. I don't know, and don't want to think about, where we would be without the wonderful doctors that spent those 13 hours "fixing" the problem. I put quotes in because unfortunately the Transposition was just one of the problems and she had to have a second open-heart at age 3 and we are waiting to find out when she has to have her 3rd. My advice is to ask questions...ask whoever you can.

[phisherally]

I noticed with a lot of other posts on the introduction page, that this seems to come with other issues as well. We go for a fetal echocardiogram tomorrow, so I hope to learn more then.

[Stacie03]

My DD has TGA. We weren't aware of it until 13 hrs after birth. She ended up being transferred to University of Michigan where her surgery took place at two weeks old. The procedure used was the arterial switch. After surgery the only major issue was her not gaining weight and being placed on special formula. She's three now and goes for yearly check-up's, she has a slight murmur from the "slack" in her artery and some leaking around the one of the connection points but we are told not to worry about that. (as if that'll happen). TGA was her only complication she also had a hole that was repaired, but aided in keeping her alive for those two weeks of waiting. Now if you met her on the street you'd never know she's any different than any other kid.

[reblessed]

My son was born sept 1 2011 with tga. He also had some other complications and defects. There was another family who had a baby girl at Ronald McDonald house while we were there who just had tga and she was home in a week completely repaired.
Our baby ended up in complete heart block (actually as a result of his vsd repair not the switch operation) and has a permanent pacemaker.
If you have questions you can contact me anytime. Msg me. I will pray for you and your baby

[reblessed]

What dis you find out at your follow up appt?

[phisherally]

We've had 3 fetal echos since we found out about the tga. Her ventricles are growing symmetrically as they should, she doesn't appear to have any valve defects or fluid around her heart, so she's doing really good in there. I probably won't see the cardiologist until babies are here. :) we are 36 weeks along next Tuesday, so almost done!

[phisherally]

Oops,forgot to quote you so you'd know I replied... and thanks for checking on us! :)

Quoting reblessed:

What dis you find out at your follow up appt?

[reblessed]

Well that's good. Have they told u the plan for when she born?

[phisherally]

She'll be admitted to the nicu so they can give her some prostaglandins to keep the hole open between her ventricles to mix the blood. Then they'll transfer her to children's where they'll do her surgery, the arterial switch procedure.

Quoting reblessed:

Well that's good. Have they told u the plan for when she born?