pulmonary atresia

[d0llfACE]

Hello,

 name is francescamarie. I am 4 1/2 mnths pregnant with a little girl [my 2nd child]

i was born with pulmonary atresia i had 3 open heart surgeries- I was born back in 1988, they didn't know anythig was wrong until i was a "blue baby".  but my daughter is at risk for having the same issues and I'm scared to death.

I have to go for 3d ultrasounds ever 2 weeks to watch her heart devolopement.

Anyone in the group found out their childs DX in utero?

 

[Stacie03]

My DD (my oldest) wasn't diagnosed until after birth and I had 3 different ultrasounds with three different techs! I am now expecting #3 and with both #2 and #3 I had an echo done at 24ish weeks to check the heart. So far only my oldest has a CHD.
Good luck with your DD!

[Evana]

My daughter's AV canal wasn't diagnosed until birth. We only had 1 ultrasound around 16 weeks so it totally missed it and her Down syndrome. My second pregnancy with my son involved more ultrasounds to be on the safe side but he was fine.  I was told by the cardiologist that if we would have had a ultrasound at 20 weeks with my daughter then it probably would have been caught.

[motha2daDuchess]

my dd's was discovered in utero...at 5 months

[TempestRayne]

My son's PA=IVS  wasn't diagnosed until after birth, when he started having problems.

[princess_1983]

My son was diagnosed with TOF with PA when I was 6 months.

[littlecheifsmom]

my sons was dx in utero at 19 weeks after the gentic testing was done.& after the death of my moteher from a gentic heart defect called hcm. we are now pending many surgries and awaiting testing to come back to see if my son has the gene for hcm.