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NEW TO THIS GROUP ANYONE ELSE LIKE ME?

Posted by on Jul. 25, 2007 at 9:09 PM
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MY SON WAS BORN WITH CONGENITAL HYPERTROPHIC CARDIO MYOPATHY I AM HAVING A HARD TIME FINDING OTHER PARENTS OF CHILDREN WITH THIS DISORDER HELP?
by on Jul. 25, 2007 at 9:09 PM
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Replies (1-3):
UmmKhalil
by Group Owner on Jul. 25, 2007 at 11:59 PM
Hi there, and welcome to the group!!

I'm glad you found us! Although I can't help with your son's CHD, hopefully there is a mom out there with a similar situation!!

Looking forward to getting to know you!

-Nicole
Mommy to Khalil-9.12.05 TOF...2 caths, 2 open heart surgeries
mamatoheartbaby
by Group Admin on Jul. 26, 2007 at 6:03 PM
I think I know of a mom ...I can sent you to her carepage ...just let me check with her first as to if she would prefer email or carepage. I will send you a message when I hear back from her.
You can also contact the www.savinglittlehearts.com or www.littlehearts.org they may have some members with the same defect as your son.
Koren mom to Addison ToF repair 1-3-06
mamatoheartbaby
by Group Admin on Aug. 1, 2007 at 6:35 PM

I sent you a message to day!
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