Moms w/ kids w/ ADHD and /or Bi POLAR, etc....
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Disability Information & Resources
posted to General Discussion
in Moms w/ kids w/ ADHD and /or Bi POLAR, etc....
on Mar. 28, 2008 at 2:01 PM
- 8 Replies
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You need to be your child's voice until they can become their own advocate.
List of Important Resources Online:
Your State Department of Education ~ Office for Special Education Services
http://www.ed.gov/about/contacts/state/index.html?src=gu
Has resources for: Individuals With Disabilities, Parents and Students
Find out if they have and download or request a copy of A Parent’s Guide to Special Education For Children 5 – 21
NICHCY stands for the National Dissemination Center for Children with Disabilities
http://www.nichcy.org/index.html
Excellent site for resources ~ has State Specific Resources Section and many cheat sheets that can be reproduced
Disability Resources on the Internet
http://www.disabilityresources.org/
Excellent site for resources ~ has State Specific Resources Section and many links to other resources
Families and Advocates Partnership for Education
http://www.fape.org/
Links families, advocates, and self-advocates to information about the Individuals with Disabilities Education Act (IDEA)
C.A.U.S.E.
http://www.causeonline.org/
This organization is for Michigan State Families, however, it will still provide good resources and information for others. Citizens Alliance To Uphold Special Education (CAUSE) is the Parent Training Information Center for the State of Michigan. CAUSE is a statewide non-profit coalition providing free information, referral, support, advocacy, and workshops to parents and professionals working with children with disabilities and special needs.
Wrightslaw
http://www.wrightslaw.com/
Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities.
Judge David L. Bazelon Center for Mental Health Law
http://www.bazelon.org/about/index.htm
Has been the nation's leading legal advocate for people with mental disabilities. Our precedent-setting litigation has outlawed institutional abuse and won protections against arbitrary confinement. In the courts and in Congress, our advocacy has opened up public schools, workplaces, housing and other opportunities for people with mental disabilities to participate in community life.
Child and Adolescent Bipolar Foundation
http://www.bpkids.org
Our Web site is the primary engine by which we seek to fulfill our mission to educate, connect, advocate, and support research on pediatric bipolar disorder. Your participation on our Web site, by reading, researching, posting, learning, offering words of support to others, helps everyone as we seek to conquer this psychiatric disorder.
DepressedTeens.com
http://www.depressedteens.com/
Welcome to depressedteens.com, an educational site dedicated to helping teenagers and their parents and educators understand the signs and symptoms of teenage depression and provide resources for those ready to reach out and get the help they need.
Attention Deficit Disorder Association (ADDA)
http://www.add.org/index.html
The Attention Deficit Disorder Association (ADDA) is designated as a 501 (c) 3 nonprofit organization by the Internal Revenue Service. This international organization has been in existence since 1989. The mission of ADDA is to provide information, resources and networking to adults with AD/HD and to the professionals who work with them. In doing so, ADDA generates hope, awareness, empowerment and connections worldwide in the field of AD/HD. Bringing together scientific perspectives and the human experience, the information and resources provided to individuals and families affected by AD/HD and professionals in the field focuses on diagnoses, treatments, strategies and techniques for helping adults with AD/HD lead better lives.
ADHD Parents Medication Guide
http://www.parentsmedguide.org/ParentGuide_English.pdf
CHADD - A Non-Profit Organization
http://www.chadd.org
Children and Adults with Attention-Deficit/Hyperactivity Disorder (CHADD), is a national non-profit, tax-exempt (Section 501 (c) (3) organization providing education, advocacy and support for individuals with AD/HD. In addition to our informative Web site, CHADD also publishes a variety of printed materials to keep members and professionals current on research advances, medications and treatments affecting individuals with AD/HD. These materials include Attention! Magazine, the CHADD Information and Resource Guide to AD/HD, News from CHADD, a free electronically mailed current events newsletter, as well as other publications of specific interest to educators, professionals and parents.
National Resource Center on AD/HD: A Program of CHADD
http://www.help4adhd.org/index.cfm?varLang=en
The National Resource Center on AD/HD is the nation's clearinghouse for science-based information about all aspects of attention-deficit/hyperactivity disorder (AD/HD). Funded through a cooperative agreement with the Centers for Disease Control and Prevention, the NRC provides information on this disorder which affects how millions of children and adults function on a daily basis. The NRC was created to meet the information needs of professionals and the general public.
Here are two sites for books
I have a list of good books – many of the authors I have heard lecture and/or met thru my involvement in a support group. Some have been recommended by other parents or professionals. Always check your local library first...or your favorite bookstore.
Special Needs Project ~ a unique disability bookstore
http://www.specialneeds.com/
ADD WareHouse ~ a disability bookstore
http://www.addwarehouse.com/shopsite_sc/store/html/index.html
Moms w/kids w/ADHD and/or Bi POLAR, etc....
Group Administrator
Replies:
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- by on Mar. 28, 2008 at 2:53 PM
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Yes, it's important to learn all you can so you can be an advocate for your child but please know that the CHADD group is in partnership with the big pharmaceutical companies so they're loyalty is to them and not to the general public as they claim. While they presumably started out with good intentions years ago, there was money to be had and hidden agendas to be fulfilled and egos to be inflated by partnering with big pharm. In any other industry, this would be construed as a conflict of interest. Hypocritical, to say the least. Would you put your faith in an organization like that? I certainly would not.
As for the "science-based information" they provide, scientific research over the last 40 years has consistently resulted in a very different picture than what is presented to the public . . . findings that don't support scientists' position are purposely excluded from those reports, and CHADD has become the PR firm, so to speak, to perpetuate the falsehoods regarding ADHD and both the efficacy and dangers of the medications.
Do your own research . . . look at their financial statements, get copies of the scientific reports they refer to, look at the resumes of the persons involved, review the law suits, etc.. You'll be amazed (and probably disgusted) at what you'll discover. You need to be completely informed when making decisions that will impact the lives of your children.
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- by on Mar. 28, 2008 at 10:29 PM
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I'd like to add another one to the list.
www.causeonline.org
They help navigate the politics of public schools.
Rebecca, Jordan Essentials, I.R.
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- by on Apr. 2, 2008 at 9:01 AM
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I will be sure to check out these sites. Our oldest is having some issues and boy could I use other ways of dealing with him.
Thank You for the info.Kathy in Rockwall
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- by on Mar. 23, 2009 at 12:21 PM
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WOW I AM KIND OF NEW IN THIS GROUP,IS GREAT TO HAVE THIS INFORMATION,SOMETIMES I FEEL HOPELESS!!!!!
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- by on Apr. 2, 2009 at 1:30 PM
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Awesome! Thanks Mary Lou!
I was just about post a thread myself on something similar. Instead, I'll just add to yours!!
I know a lot of us have kids with multiple disorders, so this may help.
Quote:
Accompanying Conditions
Many children with ADHD also have one or more additional disorders. A child and adolescent psychiatrist can diagnosis and treat ADHD and also determine if any other disorders are involved, such as the following:Learning disability. About 20 to 30 percent of children with ADHD also have a learning disability such as a reading disorder called dyslexia, or disabilities that involve writing, spelling, or arithmetic.
Tourettte’s disorder. A small percentage of people with ADHD have a neurological disorder involving various nervous tics and mannerisms.
Depression, anxiety, or bipolar disorder. An anxious child, for example, may pretend to be sick, refuse to go to school, or cling to a parent. Depressed children have trouble with moods. Some may appear sad. Others may sulk, get into trouble at school, act negative, or show a lot of anger.
Behavioral disorder. Many children with ADHD have oppositional defiant disorder, a behavioral disorder that involves defiance, arguing with adults, and refusing to obey. Some ADHD children may eventually develop a more serious condition called conduct disorder, which can involve aggressiveness, bullying, lying, stealing, vandalism, eventual substance abuse, and other serious problems. Children with conduct disorder need immediate help.
Getting treatment for accompanying conditions can make it easier to manage ADHD. The reverse is also true: Getting the right treatment for ADHD can be helpful for managing an accompanying disorder.
I find a lot of good information on the American Academy of Child & Adolescent Psychiatry website.
http://www.aacap.org/cs/adhd_a_guide_for_families/common_signs_and_symptoms
Christine
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- by on Oct. 18, 2009 at 11:23 PM
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Thanks for posting the groups that we can go gain research from. Great post. I researched a few of those websites.
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