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I am worried m son is gonna die.

Posted by on May. 26, 2010 at 11:43 AM
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It all started over a year ago. He suffered from constipation so he went to a specialist. They took blood and said his liver function levels were high. So every 2 months he went for a blood test to see if they were going down or not. They went up and down for over a year. Then he had a ct scan and it shows that his panceras is inflammed. And on top of that his levels are increasing. Now he has to get more blood work and a mrct and a biopsy of his liver. This boy is one of the smartest and loving children(when he wants to be).The possibalities are endless due to he is smart,adorable and has a great personality. I fear that I will have to see another child slip away from me. I am still not over my first one passing away 7 years ago. I watched him suffer he was only 32 days old. He was in so much pain and I had to watch him screaming with a tube down his throat to breath so he could get his blood transfused everyday. I dont know how to handle this.

by on May. 26, 2010 at 11:43 AM
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Replies (1-3):
Kat2619
by Member on May. 26, 2010 at 3:51 PM

i'm so so so sorry. what happened with your first one 7 years ago? Hopefully hiom having an inflammed pancreas is something they can fix, there are many kids who live a long happy life after a bad diagnosis. I'd like to tell you not to worry until you have a final diagnosis, but as an anxiety sufferer too, i know what you mean! I worry when my kids have a cold!!!!

I wihs you nothing but the best, and i'll keep praying your son is ok.

Kat

mommyof2596
by New Member on May. 26, 2010 at 9:07 PM

My first one was diagnosed as having fetal hydrops at 6.5 months pregnant. It is when instead of urinating fluid his body would store it between his skin and flesh. So his body would swell up. They would have to insert chest tubes to get rid of fluid in the chest cavity. We dont know why it happened. They could not find a cause.

proud_mama2
by New Member on May. 27, 2010 at 6:22 AM

I am so sorry to hear about your loss 7 years ago and your worries about your son now.  Do they have a diagnosis yet?  Do you have a good support system for your worries?  If you ever need to talk at all please send me a message.  ((HUGS))   

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