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This hot humid weather

Posted by on Jul. 24, 2012 at 7:54 AM
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is really bringing out the worst in me. This is my hand yesterday and i didn't take pics but my knees and feet were bad too. Is anyone else going through a bad flare caused by the weather? I'm not real happy because my rheaumatologist is going to up my humira to a shot a week instead of bi weekly. 

by on Jul. 24, 2012 at 7:54 AM
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29again
by Member on Jul. 27, 2012 at 11:55 PM

Oh, you look like you really hurt!!  I've been hurting, but I haven't been swelling up like that!  I'm so sorry!!! 

My rheumy upped my metho, and the prednisone.  And he said that if that doesn't help, he will put me back on the Humira.  I don't want to go back on that.  I don't like it, I'm not sure if it was working when I was on it before, and I don't want to be on it again. 

I hope you can find some relief soon!!

angelachristine
by Group Admin on Jul. 28, 2012 at 6:54 AM

thanks. I'm on humira right now bi weekly but it isn't really working. my rheumy is going to up me to every week. which I am not looking forward too. I hate shots and they make me feel yucky. Also my dr won't give me anything for pain not even a non narcotic and tylenol really doesn't touch this. he told me it's going to be a lifelong condtion so i need to get used to the pain. I think i need a new dr. Hope you can get straightened out without having to go back on a biologic.

Quoting 29again:

Oh, you look like you really hurt!!  I've been hurting, but I haven't been swelling up like that!  I'm so sorry!!! 

My rheumy upped my metho, and the prednisone.  And he said that if that doesn't help, he will put me back on the Humira.  I don't want to go back on that.  I don't like it, I'm not sure if it was working when I was on it before, and I don't want to be on it again. 

I hope you can find some relief soon!!


29again
by Member on Jul. 28, 2012 at 3:46 PM

How ridiculous!!  My doc had me on super strength ibuprofen for quite a while, then did not write me a refill back in the early spring.  No, Tylenol won't touch this kind of pain, but try some ibuprofen or aleve (naproxen sodium).  My primary told me to take 2 aleve twice a day until I could get into my first appt with the specialist.  And then he put me on massive ibup. dosages for a couple years.  Those helped me.  And since he didn't give me a refill the last time, I have been taking them OTC.  I can't get through work some days without it, and my doc is so nonchalant about it.  I told him how hard it is to do things, everyday things, and he said -- I can imagine.  Suuure he can!!  And at my last appt, he looked at my hands and said, yeah, you have some active inflammation there!  OMG, he is the master of understatements!  I really wonder why some of these people go into this field, if that is the best they can do!

Quoting angelachristine:

thanks. I'm on humira right now bi weekly but it isn't really working. my rheumy is going to up me to every week. which I am not looking forward too. I hate shots and they make me feel yucky. Also my dr won't give me anything for pain not even a non narcotic and tylenol really doesn't touch this. he told me it's going to be a lifelong condtion so i need to get used to the pain. I think i need a new dr. Hope you can get straightened out without having to go back on a biologic.

Quoting 29again:

Oh, you look like you really hurt!!  I've been hurting, but I haven't been swelling up like that!  I'm so sorry!!! 

My rheumy upped my metho, and the prednisone.  And he said that if that doesn't help, he will put me back on the Humira.  I don't want to go back on that.  I don't like it, I'm not sure if it was working when I was on it before, and I don't want to be on it again. 

I hope you can find some relief soon!!



sillymoo
by Group Owner on Aug. 5, 2012 at 2:37 PM
1 mom liked this

I would have slapped that doctor right in the face, and then told him to get used to the pain since he is an idiot and should be slapped more!

It looks like you are really hurting, and you deserve to be as pain-free as everyone else.

angelachristine
by Group Admin on Aug. 5, 2012 at 10:37 PM

thanks. I know i really need another doctor but i live in a small area so there aren't very many rheumatologists around. I almost feel like i am stuck. I called around a few months ago and no one had any openings but I'm going to keep trying until i get a new doc. he really made me feel like i was being a baby or a drug seaker for even asking.

t's just that when it gets really bad i literally cannot function so he tells me to call him for prednisone and sometimes that helps but sometime it doesn't. I have a special needs dd and a 4 year old so i have to keep going no matter what. 

Quoting sillymoo:

I would have slapped that doctor right in the face, and then told him to get used to the pain since he is an idiot and should be slapped more!

It looks like you are really hurting, and you deserve to be as pain-free as everyone else.


sillymoo
by Group Owner on Aug. 7, 2012 at 12:45 PM

I understand. I had bad insurance a few years ago and had to drive an hour each way to see a rheumatologist, which is absurd in my area. I live in an urban area with three large hospitals less than 10 miles from me. But it was worth it. I noticed that the better the doctor is, the less you have to go see him/her. Keep trying!

I don't know how you do it. I had to babysit my 7 year old nephew 4 days a week for a summer. He has ADHD but my sister will not give him drugs for it as she thinks he acts normal for a boy. It was all I could do to have a glass of wine to unfray my nerves and go to bed after she picked him up. My husband would either bring home dinner or heat up leftovers. My daughter is 30 days older than him and was really helping my out trying to watch him.

Not saying that your kids are anything like that. I hope you understand.

angelachristine
by Group Admin on Aug. 10, 2012 at 1:19 PM

Unfortunately my dd is very severely autistic, non verbal, as well as mentally handicapped and adhd. we have to keep everything locked up and key locks on all the doors because she trires to get out. She also throws terrible fits and will hurt herself and not sleep at night. this is even with medication. I love her to pieces but it is really hard. I'm just glad ds starts school this year too so I'll have a bit of alone time. I feel bad for saying that but sometimes i feel like i never get a break :( 

Quoting sillymoo:

I understand. I had bad insurance a few years ago and had to drive an hour each way to see a rheumatologist, which is absurd in my area. I live in an urban area with three large hospitals less than 10 miles from me. But it was worth it. I noticed that the better the doctor is, the less you have to go see him/her. Keep trying!

I don't know how you do it. I had to babysit my 7 year old nephew 4 days a week for a summer. He has ADHD but my sister will not give him drugs for it as she thinks he acts normal for a boy. It was all I could do to have a glass of wine to unfray my nerves and go to bed after she picked him up. My husband would either bring home dinner or heat up leftovers. My daughter is 30 days older than him and was really helping my out trying to watch him.

Not saying that your kids are anything like that. I hope you understand.


angelachristine
by Group Admin on Aug. 10, 2012 at 1:22 PM

this has been a really bad month. my fil passed away, dh had dental surgery and I had to take care of him and then we had to move.  I think that might have had something to do with my flare. Anyway I hope things settle down now. tired of being so stressed. lol

dr_m
by Member on Aug. 14, 2012 at 2:19 PM


Quoting angelachristine:

this has been a really bad month. my fil passed away, dh had dental surgery and I had to take care of him and then we had to move.  I think that might have had something to do with my flare. Anyway I hope things settle down now. tired of being so stressed. lol


That is really BAD about the pain comment.. No, you should not have to live with the chronic pain..  Ibuprofen  should be better than just tylenol, (I sometimes take 2 or even 4 ibuprofens, but also take generic prolosec)... Maybe you can get something stronger from your regular internist if you have one.   Another doc writes my pain meds, and thankfully I have been able to stop the strong ones.  I hope you can find a new rheum !  and hope you are feeling better... 

 

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