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Please help me with this. Just a couple questions

Posted by on Jan. 2, 2009 at 7:48 PM
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Hello,

            I have a question. I just turned 20 in November and I have been dealing with RA since I had gotten pregnant in may of 2007. It all started before I even knew I was pregnant. My right side, like my foot and hand, would swell to where I would not even be able to walk or grab anything. It wasn’t until later after going to several doctors that we discovered that I was pregnant. Well my son is almost a year old now. After I had him the RA spread to the rest of my body. Such as both feet and hands, my ribs, neck, left knee, and my hips. Just two days ago I was out of prednisone. Which is the only thing that has helped me. I have been on it for 11 months now. I take two 5 mg pills every night just so I will be able to sleep. But anyways.. I was out and the doctor told me he would not refill it because the rheumatologist was the one following me on it. But I guess he spaced the part where he told me to stop going to the RA doc because he was not helping me. So I ended up in the ER I was getting sick and couldn’t not move. I was stone. Well that’s how I felt. The ER doctor came in and asked me so do you know what you have.. I said well one doctor says RA the next says no. He said ok so we are on the same page. I cant tell from your file what is going on. The test you have had all say you don’t have RA but the doctors you are seeing seem to think that’s what it is. So we are stuck and don’t know what to do. I want to have another baby before the end of this year so we want to get a start on things but we are to scared because I have to take this medicine in order to just take care of our son. So my question is it to dangerous to get pregnant while taking this prednisone? And also what should I do about these doctors?? I will love any feedback you all can give.. I am only 20 and already they say I have RA.. Come on there has to be a mistake right?


 



 


by on Jan. 2, 2009 at 7:48 PM
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Replies (1-6):
BradyBunch6
by Member on Jan. 3, 2009 at 9:12 AM

First and foremost (((hugs))).  I can only imagine how frusterated you must feel!  I was diagnosed when my oldest son was 2 and my twins were 2 months old... but at least I was diagosed.  I can imagine it must really stink to NOT be diagnosed.  It really sounds like you have RA, but there are also other autoimmune diseases that have the symptoms of RA.  It IS possible to have RA and not have it show up on the tests.  I hear it all the time with ladies on this site.  I can't believe your pcp told you to stop going to the Rheumatologist!  Don't stop!  Rheumatologists know A HECK OF A LOT MORE than general doctors about RA and diseases that are related, like lupus and fibro and things of the like.  Trust me!!!

To answer your question... you will want to check with a doctor or pharmacist to be certain, but I do believe it is okay to take prednisone while you are pregnant.  10 mg is not a super high dose, and I was on prednisone while I was nursing my twins.  All of the doctors said it was safe to take while nursing... so I think it is okay to take while pregnant.

Good luck hun.

Suzi

sillymoo
by Group Owner on Jan. 3, 2009 at 10:22 AM

Definately go back to the Rheumatologist. Or find a different primary care and Rheumatologist. Most people do not respond right away to drugs. Some times it takes several months to show any results. And as the other poster said, RA is difficult to diagnose. There really isn't one special test you can take to be certain it is RA. Doctors use several blood tests and x-rays along with your symptoms and conclude that it probably is RA.

There are drugs out there that don't interfere with having a baby. I was on Humira before I knew I was pregnant and my daughter is perfectly fine. My first Rheumatologist really encouraged me to have a baby because it usually causes women to go into remission. It was a good thing I didn't, because I wasn't ready and I didn't go into remission when I did become pregnant!

Dustyman
by Member on Jan. 3, 2009 at 11:16 AM
I have had RA for 11 yrs, it took 5 yrs before it showed up positive on a test so just because the tests say no that doesn't mean you don't have it. From what I have learned 5 yrs is the norm. for it showing up. Also, the kept me on Prednisone the whole time I was pregnant in 2006. They said it passed right across the placenta and doesn't hurt the baby. I took 15mg a day at the time. Also, 75% of women who are pregnant and have RA go into remission. I didn't but did for 3 weeks after I had her. I've only been pregnant once but they said it could happen the second time even though it didn't happen the first so that's a plus too! Let us know how it goes!
patience_now
by on Jan. 3, 2009 at 11:46 AM

sweetie you don't let those doctors bully you. they just don't want to do there job. the simple fact of the matter is you are in pain period.  every human has a right to pain relief. Go back to your rhuemy. i have had RA now for 10 years. at least i think that's how long i've had it lol, that's how long ago i got an answer instead of oh your just tired,maybe your depressed yada yada. predisone works for you? then you should have it. i don't know about it affecting pregnancy, i've never been pregnant while on treatment. i'm currently taking nabumetone for inflamation. but, the pain has been so bad that i've actually gotten my doctor to prescribe vicodin before. but, now with me having diabetes, we're trying a different route. the main thing is pain relief, you have to be able to move around without pain, i personally love celebrex. but my insurance won't cover it blah. yes it's a long fight hun, but don't give up. make them see you and make them treat you. good luck hugs

nena777
by Member on Jan. 3, 2009 at 12:12 PM

Hello There...

I currently am 6 1/2 months pregnant and take 10mg of prednisone...I got the ok from all 3 of my doctors on this.. so far all my tests, blood work and ultrasounds have been ok.. the ultrasound specialist has been very happy with how the baby is growing... and I see him almost every month.

Sometimes bloodwork will not show a positive reading for RA but from what you write, it sounds like RA... try to see if you can see a different rhumetologist... also in the meanwhile, you can try taking some anti-inflammatories like advil...once you know that you are pregnant, you might want to stop taking those, I was told to come off the anti-inflammatories.

if you have any questions, please let me know and I can try to help

Thanks!!!

Irene :)

youngmomma_feb4
by New Member on Jan. 3, 2009 at 12:48 PM

Thank you all so much. I am hoping they will give me something that will help me. The doctor put me on vicodin last time I seen him but those things just aren't doing a good job at cutting the pain. I want to get off this prednisone because I have actually gained 30 lbs and my body is destroyed. I have terrible stretch marks all other my body. They are even moving down my fore arm. Well thank you for all the support. It helps so much you wouldn't believe.   

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