do you think it is ok to follow your motherly instincts and try feeding your child against what your child's dr says to do?

I need more info.
Is your child at risk for aspiration or some other kind of harm? If so, then I would accept the medical advice and wait.
or is it that you feel the pediatrician is being overally conservative in pushing your child to eat and you feel that your child is ready now? Have you discussed your feelings of concern with the pediatrician?
What did the pediatrician tell you and why?
I agree; it depends. Need more info and more about why the Dr recommends whatever they recommend. Some things they just recommend based on guidelines for all kids or all kids with X diagnosis, not taking your child's differences into account. Other things are because of real risks to your kid.
the thing that I am going against is her feeding tube. the baby has been having issues with her tube at night. she is on 24 hour feeds but the other night she wrapped the tube around her neck. this really freaked me out. now I am not connecting her to the tube at night because I am afraid she will hurt herself. She won't take the bottle and doesn't even seem like she is hungry when she is disconnected from the tube. I am not sure what to do but I know that I can't have her connected unless I am sitting there staring at her all night.
Wow, it sounds like you are in a very difficult situation as a mother.... your child's nutritional needs vs safety...
Some suggestions:
- try a button down full length sleeping outfit (PJ's) with the feeding tube coming out the bottom; you can also try swaddling her from the chest down (leaving her arms out), so the tubing is not exposed
- place the pump itself @ the foot of her crib (I'm assuming she's is a crib, if not then @ the foot of her bed), so that the feeding tube is not near her face or neck
- This one you need to discuss with her Dr first: Under her Dr's supervision, her formula may be modified (my daughters was, but for other reasons), from say 15Cal per ounce to 22 or 30 Cal per ounce. with the extra Cal per ounce, she should be able to make up a lot of the Cal that she is missing out from the nighttime feeding breaks. My daughter was on Elecare & I still have the mixing direction (along with nutritional content) for that formula, but again, talk to your DD Dr & get his/her advise, because what is great for one child may not be for another child
I hope this help :)
Quoting nscr24x17x3:the thing that I am going against is her feeding tube. the baby has been having issues with her tube at night. she is on 24 hour feeds but the other night she wrapped the tube around her neck. this really freaked me out. now I am not connecting her to the tube at night because I am afraid she will hurt herself. She won't take the bottle and doesn't even seem like she is hungry when she is disconnected from the tube. I am not sure what to do but I know that I can't have her connected unless I am sitting there staring at her all night.
My daughter gets her tube wrapped around her waist and legs at night. She's 11 months old and moves alot at night, so yes I do check on her alot but her pump also has an alarm on it if there ever is a crease in her tube due to her wrapping it around her. Do you put your daughter in sleepers that snap all the way down? I do with my daugter and have the tube come out near her crotch area.
My daughters pump is set at 45 mls/hr and this accounts for the majority of her calories for the day. She gets 5 bolus feedings during the day. If your daughters pump is set up anything like mine then her calories are being counted for a certain amount per day. If you take her off completely then she will lose those calories. I would most certainly talk to your doctor and nutritionist (if you have one we do) about this problem before taking her off completely at night.
she sleeps in the footed outfits that snap all the way down. and is on 25.5 cal alimentum at 24cc per hour all day. her body can't handle any higher volume then this. I always put her bag at the end of her pack and play where she sleeps but somehow she still gets it wrapped around her neck. I am going to go get a second opinion on her care from a new gastro dr coming up. I feel like my gastro is not doing everything he could to find out what is going on with her. I just feel at a lose with everything. I don't want her to lose weight but I also can't chance her choking herself. her machine will go off if there is a kink but when she got it around her neck it didn't kink so the alarm didn't go off. thank you for the advice

Im sorry you are going through this and I understand your pain. I set an alarm every 2 hrs and hand fed Ameena all the through the night for 2.5 years. I know, I didn't get much sleep, but I was very scared about exactly what you are going through. We chose to feed her without a pump by bolus method.
It's personal decision, but for our family it worked out for the best. (we also used Polyglucose Powder mixed with Pediasure to add additional calories.)

This how we feed Ameena for every meal @home we have an IV pole that I connect the tubing with an elastic band. Picture was in Dec 2008, Ameena is 4.9 now.
Keep us posted as to what is happening with your little precious one.
Check out these interesting topics from all over CafeMom:
- Smarter Living:Sun Safety
- Family Piggy Bank: Meet Your Goals
- Positive Parenting: Host a Card Shower
- Dinner Ideas: Ranch Spinach Pasta Salad



- nscr24x17x3
on Apr. 8, 2010 at 7:21 AM