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1st Official Kawasaki Disease Awareness Day!

Posted by on Jan. 26, 2011 at 8:21 AM
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Today is the 1st Official Kawasaki Disease Awareness Day! 2 years ago today Hudson was diagnosed with KD and rushed to Rainbow Babies & Children Hospital so that he could receive the vital Intravenous immunoglobulin (IVIG). The only cure for KD is the IVIG, which is extracted from the plasma of over ONE THOUSAND blood donors! I'm so very thankful to those over 1,000 strangers who gave and saved Hudson's life!
There is no known cause nor test to detect it, so it often goes undiagnosed or treatment is delayed; children have suffered aneurysms to the heart, heart attacks and even death from this disease. Hudson has 2 very small aneurysms, but is doing well and is closely monitored.

Please know the symptoms for early diagnosis is key to prevent long term damage:

Reddening of the eyes
Rash
Joint pain
Strawberry tongue
Hands and feet skin peeling
Swollen lymph nodes
High, persistent fever that is unresponsive to medicine.


Waiting for the doctor at Rainbow Babies & Children Hospital in Cleveland, Ohio to start the IVIG.

The photo above showed the red eyes and red/cracked lips, common with Kawasaki Disease.

An attempt to get his fever down, which had reached 105.4! You can see the rash on his chest, his whole body was covered in it.


Posted by on Jan. 26, 2011 at 8:21 AM
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Amy385
by Angelbaby on Jan. 26, 2011 at 12:58 PM

 I made this a sticky because im glad you posted it. Otherwise id b totally unaware!

Thank You 1000 Donors!!!!

Your son is totally handsome btw!

KatieLeigh1984
by on Jan. 26, 2011 at 7:25 PM

Awesome! Thank you! It is amazing to think that so many people helped save his little life :)

Quoting Amy385:

 I made this a sticky because im glad you posted it. Otherwise id b totally unaware!

Thank You 1000 Donors!!!!

Your son is totally handsome btw!



KatieLeigh1984
by on Jan. 26, 2011 at 9:27 PM

Thank you for all of the support! I just wanted to share a happier photo of Hudson. This is him today, exactly 2 years after the diagnosis and still smiling! He really is my little superhero!


Amy385
by Angelbaby on Jan. 27, 2011 at 8:44 AM

 You know how bad i want to steal your sig with having 2 kids with autism myself. i know were in 2 groups 2gether & its pretty much the only 2 im active in. LOL!

KatieLeigh1984
by on Jan. 27, 2011 at 4:29 PM

Go ahead and steal it! I made it and you are more than welcome to it :)

Quoting Amy385:

 You know how bad i want to steal your sig with having 2 kids with autism myself. i know were in 2 groups 2gether & its pretty much the only 2 im active in. LOL!



Crystal8327
by on Jan. 27, 2011 at 11:14 PM

wait i thought this was a childhood virus that they get over. Am i confusing the name with something similar? Thought my friends twins had this and it was flu like symptoms.

KatieLeigh1984
by on Jan. 28, 2011 at 2:26 AM

This is far from a virus, it is an autoimmune disease. Some kids suffer from cardiac damage like my son did, some don't, but it is still a lifelong condition and  even if no initial heart damage is seen it has to be continuiously checked through their life.

Quoting Crystal8327:

wait i thought this was a childhood virus that they get over. Am i confusing the name with something similar? Thought my friends twins had this and it was flu like symptoms.



Crystal8327
by on Jan. 28, 2011 at 11:40 AM

Yes I got it mixed up with the coxsackie virus. I never saw either spelled and I think my friend pronounced it wrong.

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