My daughter Bayleigh has Angelman Syndrome. We just got our last sleep study results in and they were not good. The doctor has diagnosed her with Central Apnea. This is a type of sleep apnea where the brain is involved. Bayleigh had 21 neurological episodes in a 7 hour period where her brain told her it was ok for her to not breath while she was sleeping. During this period her oxygen levels dropped to the 70's (should be in the high 90"s). She will have to now sleep on oxygen but waiting to hear from her pulmonologist to see if there is anything else that we need to be doing.
Has anyone else had any experience with this? If so did your little one out grow it or still has episodes? Thanks