Topic of the Week July 6-12, Coping with your child's disability*Group Announcement*

Replies:

• 
• by
  • Mommi_of_3
  on Jul. 13, 2007 at 4:31 PM
• How did you feel when you first found out your child had a disability? 
  Very overwhelmed
  
  Who told you?  How did you feel? 
  My OBGYN at my 32 week check up, I felt nervous and scared and confused because she couldnt give me details on the situation 
  
  How did you handle it?  Who did you tell?  Did you tell people right away?  How did they react?
  I started Crying, I told my husband . It took a bit to compose myself and call my mother and tell her. She reacted very positive and tried to console  me. As for everyone else they asked questions that I didnt have answers to . My baby has hydrocephalus and a rare condition Agenesis of the corpus callosum ( which is the part of the brain that connects the right and left of the brain is missing). I couldnt answer questions because I wasnt getting concrete answers myself and that fustrated me.
  
  How do you feel now and how are you dealing with it now?
  Now I feel differently I'm not nervous or scared definitely not overwhelmed. I'm extremely happy with Jaelyn's progress.
  
  Do you have any advice for other moms?
  My advice would have to be be strong because what doesnt break you makes you stronger.It will not be easy in the beginning, but you will learn to cope and deal with the situation and in order to do that you need to be able to talk about what and how u are feeling. You need people that will support you, your family and friends, a group at cafemom.com : ).  AND laslty "Do Not' compare your child to another.( you will drive urself crazy) remember each child progresses at their own pace.
  
  
  
  

  ,

         Leslie

• 
• by
  • TWEETYCAD
  on Nov. 6, 2009 at 1:00 AM

• HOW DID I FEEL WHEN I FOUND OUT ABOUT DAUGHTER  CONDITIONS LIKE A PIECE OF ME DIED.  I WAS TOLD BY A NEROLOGIST  WHEN SHE WAS 10 MONTHS OLD  THAT SHE WAS BORN WITH PART OF HER BRAIN MISSING FROM GETTING AN MRI DONE. HE SAID IT HAPPENS IT COMMON BUT I DONT THINK IT I NEVER HEARD OF ITI KEPT TELLING HER PED DR THAT THERE WAS SOMETHING NOT RIGHT SHE NOT USING HER LEFT SIDE LIKE SHE SHOULD TOOK 5 DR TO GET ONE THAT WOULD LISTEN TO ME  LATER JUST LAST MONTH OCT 2009 I FOUND OUT SHE GOR CERBRAL PALSY TO AND PACHYGYRIA AND HEMIPERASIS  AND OTHERE THINGS SHE GOT AN EEG DONE TO SEE IF HAVING SEIZURES YET  SHE WASNT GOING TO SLEEP DR CAUSE SHE DONT SLEEP DOINF SLEEP LOGS SO SEE WHAT HAPPENS WITH THAT

  I CRIED WHEN TOLD AND CRIED ALL THE WAY HOME TOLD HUBBY WHEN HE GOT HOME HE JUST HOLD HR AND KISSED HER AND SAID IT GOING TO BE OK I SAID I HOPE SO HE SAID U GOT TO GAVE FAITH  WE TOLD HIS FAM RIGHT AWAY AND I TOLD MY DAD TO AND MY BOYS THEY SAIDS IT BE OK AND ASKED ? I COULDNT ANSWER RIGHT THEN STILL SOME CANNT

  IM TAKING IT DAY TO DAY I GET SCARED EVERYTIME WE GO TO THE DR WAITING TO HEAR MORE BAD NEWS  AND I CRY SOMETIMES AT NIGHT WHEN SHE IS HAVING A BAD DAY SO IT IS HARD IT HARD ON EVERYONE IN THE SITUTION WE ARE IN KIDS WITH SPECAIL NEEDS

   MAKE THE DR LISTEN TO U AND MAKE THEM TELL U EVERYTHING IM FINDING OUT THINGS SHE BEEN DIGNOSED WITH NOW AND IT IS UPSETTING TO KNOW THAT THEY DONT TALL U EVERYTHING I HERE TO LISTEN AND TALK IF NEED TO  CAN REACH ME HERE  OR AT ACEMAN67@netzero.net or yahoo im cadtsd

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