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Developmental follow ups

Posted by on Jun. 20, 2007 at 10:48 PM
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I was just wondering because Jace's 12 month (adjusted age)developmental follow up is coming up in July, do they do this everywhere?
What it is, is every 3 months or 6 months depending on ur childs progress the previous follow up, we go to the hospital and different therapist test Jace on different things, language, gross and fine motor skills, weight and height, that kind of stuff, and it tells u where they are at developmentally and to see if they qualify for any therapy...i always get extremely nervous before we go because i want him to do well!! Im always afraid that there is something i havent taught him! Thats because when we went for his 3 month (adjusted age)check up, he couldnt do pull to sit (which was MY fault, cuz i hadnt ever done it with him because he wasnt holding his head well at that time and i was scared it would hurt him)So i am always paraniod that i have left something out!
Just wanted to know if they do this in all cities or states?
I will update u guys once he goes on how he is doing!
by on Jun. 20, 2007 at 10:48 PM
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by Member on Jun. 21, 2007 at 3:27 AM
Be sure to keep us posted, but I'm sure Jace will do great! 

I think they will be doing Mason's developmental follow up, with ECI, in 6 months or as necessitated.  We used to attend another clinic, affiliated with the hospital, and they did assessments every 3 months.  We stopped going to those, as my pedi was doing the same thing in her office at each appointment.  I'm very confident with her assessment skills, so I didn't see the point in double dipping. 

Anyhow, I was a ball of nerves at his assessments too.  I wanted him to do well, and in the back of my mind, I wanted them to say he didn't need services.  I knew he likely would, at some point, but it was slow in surfacing. 

I think I posted this elsewhere, but ECI says Mason doesn't need PT / OT / ST for now.  The developmental specialist is scheduled to come, for play therapy, twice a month.  The goal there is to get him more mobile and ultimately walking.  It's been two weeks since they completed all components of the assessment, and they just recently got all of Mason's records.  So, her first visit is next week. 

I talked with her, on the phone, to finalize some scheduling.  I told her that in the last two weeks Mason has made phenomenal progress.  When she was here last, he would stand with assistance in getting up, but not pull himself up.  He also was still rolling everywhere.  Since then, it's been fast and furious with him.  He started crawling literally the day after we met with her.  Then, he mastered pulling himself up and is cruising along furniture now.  So, she said we may cut the visits to once a month.  LOL, they haven't even started yet! 

Anyway, I'm proud of him.  It's been such a source of concern for us, and now I wish I had relaxed a bit more, for all these months.  I guess I'm always on hyper vigilant mode though. 

Try not to stress too much about the assessment.  I too am guilty of that.  I finally decided that I've got enough on my plate, as it is, so I'm trying not to worry about the "non-existent" problems.  

Good luck...  I'm sure Jace will do fantastic... Keep us posted!
by Member on Jun. 21, 2007 at 8:34 AM
Well, we are almost 4 and still getting assessments. Victor has CP and some "sensory integration" issues and we go every 3 months, Oliver is hypotonic so does not qualify for anything even though he is a cardiac and pumonary cripple and on disability for that! My boys were evaluated a few weeks ago and they scored almost a year older in verbal skills, but behind a bit in motor (obviously I said) and behind in social because they don't have many friends? I was like "?What? They aren't even 4 and they have each other? They have 3 girls around their age that they play with regularly, how many freakin' friends do they need? I see lots of "normal" kids in the play grounds and they don't seem any more advanced socially then my boys. My boys are very "clingy" when they go out and Oliver is terrified of stangers, but the poor kid had 7 major hospitalizations since the NICU (including 2 heart surgeries and ICU stays for sever asthma/pneumonia), and 5 of them were between the ages of 2 and 3 and I think he is still very scared of a lot of things! I do see that they are still behind motor wise and I just incorporate all of their PT and OT exercises into daily like. Playdough is great for working on coordination and finger strength, kicking a soccer ball works on coordination and balance, we do wheel barrow races to work on upper body strength, trampoline for balance etc. I remember those early checks and was really scared, but hang in there J
by Member on Jun. 21, 2007 at 9:16 AM
They do have something similar here, but to be honest we didn't participate... They were only available to see people at 11am 1 day a week and being a single mom and being at work it didn't fit into our schedule... Jared was in Birth to 3 (it has different names all over the US) from the day he came home from the hospital until the day he turned 3.  Jared was always a little behind for his adjusted age until about 3 actually... and now he is way ahead of where he is supposed to be..
Keep us posted.
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