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so upset

Posted by on Jul. 1, 2011 at 7:57 PM
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DD was recently approved for SSI so when we started getting the money I started getting things I thought would be good for her.  recently I ordered her a set of 5 fidget balls.  each had a different filling for her to squish.  they got here TODAY and already all 5 are in the trash!  she ripped them apart and tore out the filling!  she uses fidgets at school and I know there are times when they are a good thing here too.  I thought she'd love them but instead she destroyed them.  I'm about ready to cry.  I know it seems like such a small thing but I honestly thought she was past the stage where she destroyed everything.  she's been doing so good at not breaking crayons on purpose or tearing pages out of books.  for her sake and mine I'm going to give her an early bedtime tonite.

Robin - mom of 1 special little girl, wife to Tim

Philippans 4:8  Finally, brethren, whatsoever things are true, whatsoever things are honest, whatsoever things are just, whatsoever things are pure, whatsoever things are lovely, whatsoever things are of good report; if there be any virtue, and if there be any praise, think on these things. 

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Posted by on Jul. 1, 2011 at 7:57 PM
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created4apurpos
by Member on Jul. 5, 2011 at 8:12 PM

ok I know this was just a vent and it was a holiday weekend but I posted this 4 days ago.  this is supposed to be a support group, where's the support??????  even if you can't think of something to say in response you can still send a virtual hug!  not all of us have someone offline to give support and encouragement so we come here.  we already feel alone and it hurts to be ignored.

sweetness65
by Member on Jul. 5, 2011 at 9:05 PM

Hi,

Just saw your post..sorry this is happening!  Our kids just have off days..some good...some bad..maybe something else was bothering her?  I just took my son (he has down syndrome..) to the genetic doctor and he is usually well behaved..not this time..omgosh!  tantrum, winning...groaning..wouldn't sign with me..talk about being stressed out!


Tomorrow is a new day!  If you need to vent,chat,support..I'm here..  you can message me privately , add me as a friend..maybe we can chat more?  where are you from?

Take care,

Mary

busy mom

created4apurpos
by Member on Jul. 6, 2011 at 5:09 PM

wish I could say it was just a bad day for her but that's not the case.  thank you for responding.  she gets into everything all the time.  I'm sure to her she was just exploring.  she was interested in the balls that were inside the bigger ones so she went after them.  she didn't do it out of anger or frustration but out of curiousity.  last nite I had to replace keyboard buttons she decided to pull off so the squishy balls wasn't and isolated incident.

megs2boys
by Sammy's Mama on Jul. 23, 2011 at 7:54 AM
Oh no! I can see how that would be very discouraging =(
peasntatersmom
by Leslie on Jul. 23, 2011 at 11:03 AM

 frustratedAw I know that we can all relate to your frustration.  Raising a developmentally delayed child is not an easy thing.  It is full of ups and downs, triumphs and disappointments.  I suggest keep trying the fidgets, especially since you know she likes them and uses them at school.  YAY for the SSI by the way!  That will really be a big help in more ways than one!  It seems like maybe just an age (cognitive) thing.  Many kids go through a "stage" where they like to tear things up.  I suggest stopping her in the act and talk about how we should be nice to our things.  :)  Let her see you "being nice" to your things lol.  It may not help but it may just sink in after a few times.

I am really sorry that you don't feel that you are getting support here.  I really do try to come by here every day, but sometimes I just don't make it.  I have been pretty busy battling seizures with my son lately along with all the usual things like summer therapies 3 days a week for Jerry, swim lessons for my DD, Dr. appts/phone calls, plus working 2 part time jobs.  I sincerely care about every single person in this group.  Many here are friends on FB as well.  Please know that even if I don't reply right away I will be coming!!  I can relate to you well because I also don't have any real support outside of this group.  Please know that we are here for you!  You can come by here and vent anytime!  Sometimes it helps just to type it out.  :) 

Hang in there girl, you're doing great!!  

group hug   

pqsmylie
by New Member on Jul. 23, 2011 at 4:07 PM
I have a 4 year old that tears everything up. My house is pretty much bare. He climbs and even gets the pictures on the walls. I fully understand your frustrations.
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peasntatersmom
by Leslie on Jul. 26, 2011 at 12:19 PM

 How are you doing today??

created4apurpos
by Member on Jul. 28, 2011 at 2:50 PM

there are still good days and bad days.  today is a not as good day.  she's pulling all her toys out at once but at least she's not destroying them.  she's going to get a full eval next month so hopefully we'll get more tips for dealing with her.  its just going to be trial and error as to what fidgets will do the job with her and what ones to avoid (obviously we'll be avoiding the squishy balls in the future).

peasntatersmom
by Leslie on Aug. 2, 2011 at 11:20 AM

 Please let us know how the eval goes!  I will be watching for your update! 

In the meantime, hang in there and stay strong.  I think most kids pull their toys out all at once lol.  I know mine do (even my typical DD). *sigh*  I agree with your trial and error approach.  Sometimes just experimenting with different things is the best way to find what works!!

hugs

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