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Is it always so hard to get Doctors to see there is a problem?

Posted by on Nov. 11, 2011 at 7:33 PM
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I am a mother of 4 ages 12 to 2 I also have 4 soon to be step children.  My 4 year old is behind I have been to the doctor about her issues and they seem to want to just play guessing games and not run any test.  I am very angry about this.  Is it this hard for everyone?  Do you have to fight or force a doctor to really figure out what is going on with a child?

shruggingRaysbaby79

by on Nov. 11, 2011 at 7:33 PM
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Replies (1-10):
sayres
by on Nov. 11, 2011 at 8:55 PM
Welcome to the group. I would say you have to push sometimes but the trick is to find the right type of doctor for your child's issue. What type of doctors have you seen? What are your DD's delays? Is she currently getting therapy?
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Raysbaby79
by on Nov. 11, 2011 at 9:04 PM

She has seen the bone and muscle specialist and now is seeing a neurologist.  She is 4 and just started talking no complete sentences fits like no other and very clumsy.  Her pediatrician said either CP or Asperger but from the research I have done it does not fit.  Dr now is treating her for AD/HD but she is not hyper she is 4.  It does help to slow her brain down a little though she has made some improvement since she started this treatment, but I know there are test that should be ran and they do not want to run them.

sayres
by on Nov. 11, 2011 at 9:31 PM
Has she been seen by a developmental ped? They sometimes can help bring things together. Many children with developmental delays have several diagnoses. By any chance is your DD being seen by and ST or an OT? If so what do they think?
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ambernicole531
by on Nov. 11, 2011 at 10:11 PM

  We are in a similiar situation with my four year old son. He is just now putting words together and trying to talk, he is clumsy, and has a hard time with fine motor skills. The referrals I have gotten are for a year away. The best thing that I have done so far with him is talked to the school system. They have set him up in the special education preschool program and he sees a st, ot, and pt. they are all wonderful and reassure me that while he does need to get in it is OK that it is taking a while. It doesn't really matter at this point he is getting the services regardless. He is also going to be going to therapy outside of class soon. I know it is very frustrating, but do not be afraid to tell them you are not comfortable with their approach, or get a new doctor. Best Wishes!!!

Raysbaby79
by on Nov. 11, 2011 at 10:20 PM

I have also gotten ahold of the school system waiting on testing from them so she can get started with the preschool program It is just frustrating I have watched this for years she goes through times when she won't walk and can't tell u way other then Mommy I fell down again.  It is hard to watch her go through this and not know what to do. I have tried to get her into extra therapy but of course the insurance company does not see a reason for it.  So I am trying to help her and do what I can myself while I wait for doctors and others that can help to realize she needs the help.

sayres
by on Nov. 12, 2011 at 7:08 AM
I know it is hard but you are doing what you can. When is the school system going to evaluate her? Do you live near a large city (an hour or 2 away)? Maybe you could look for a neurologist or developmental ped there.


Quoting Raysbaby79:

I have also gotten ahold of the school system waiting on testing from them so she can get started with the preschool program It is just frustrating I have watched this for years she goes through times when she won't walk and can't tell u way other then Mommy I fell down again.  It is hard to watch her go through this and not know what to do. I have tried to get her into extra therapy but of course the insurance company does not see a reason for it.  So I am trying to help her and do what I can myself while I wait for doctors and others that can help to realize she needs the help.


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Raysbaby79
by on Nov. 12, 2011 at 10:53 AM

I have just moved into this school district and they are being very helpful I filled out the paperwork and am waiting for them to tell me when the testing is.  I am calling next week to find out if they heard anything.  I was told they are wanting to get her into the program by december or January.

sayres
by on Nov. 12, 2011 at 12:09 PM
That's great! When is your appointment with the neurologist? Hopefully you can get the results of the assessment and you can bring them to your appointment.


Quoting Raysbaby79:

I have just moved into this school district and they are being very helpful I filled out the paperwork and am waiting for them to tell me when the testing is.  I am calling next week to find out if they heard anything.  I was told they are wanting to get her into the program by december or January.


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Stephensmom1214
by Patty on Nov. 12, 2011 at 6:03 PM

That's great that they are moving so quickly.  I would also recommend getting a referral to a geneticist/endocrinologist.  I think that would probably be very helpful as well.  And if your pediatrician has been less than helpful, I'd suggest you find a new one.  And welcome to our little group!

Quoting Raysbaby79:

I have just moved into this school district and they are being very helpful I filled out the paperwork and am waiting for them to tell me when the testing is.  I am calling next week to find out if they heard anything.  I was told they are wanting to get her into the program by december or January.


Raysbaby79
by on Nov. 12, 2011 at 6:22 PM

Thank you all for all your replies I am relieved to know that it is not just me and that there are others that understand what I am dealing with .

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