I'm a single divroced mother of two girls ages 3 years old and 22 months old. They are beautiful, smart, sweet, wonderful girls and they are the center of my world. My oldest was diagnosed as developmentally delayed at 18 months. We had allready dealt with several small medical issues but nothing this big. We thought at first it was just the speech delay that was causing all of her emotional and behavioral issues. She went through a year and a half of speech therapy and improved slightly in her speech but it was like everything else was falling even further behind. The treatment was through the Childhood Developmental Service Agency (CDSA) and I can only praise them! They were all amazing and worked so hard and cared so much about my daughter. Their program aged out at 3 yeard old to the school systems Early Childhood Developental Agency. She was re-evaluated and recieved clinically significant or below average on everything. It was heartbreaking to see it printed out like that. But we have worked hard and she now has a new bigger team of therapists to work with her. We are scheduling genetic testing as a precautionary measure. I joined this group and this site because I want to be strong for my girls and I could just use a little more support. Last month I helped with the planning of a suport group in my area for parents with developly delayed children. I'm really excited to go to the next meeting this week and I am equally excited about this site!
I would love to hear from anyone who has a similar situation, even if you just know about the genetic testing or have an experience to share. Thanks for listening!
Welcome to the group!! My son is developmentally delayed as well, with his primary issues being in motor and speech. We saw a geneticist when he was 17 months old (he is now almost 5), who diagnosed him with Rubinstein-Taybi Syndrome. We didn't pursue actual blood tests because it involves a chromosomal micro-deletion, and is not very accurate. But as far as seeing the geneticist goes, be prepared with a LOT of family history information.
Good luck!
Thank you! The support group is a Circle of Parents group. We live in a small county so right now we've got about 6 adults and 5 kids (couting my two kids). I would suggest looking into Circle of Parents and seeing if it's in your area. It's a parent led and controlled group. We have a facilitator who is a therapist for developmentally delayed children. The funding is through Smart Start. We actually decided tonight to combine another support group with ours so we're expecting a couple extra members next week. Good luck finding something in your area!
Meet Kelseyciarah
This Virginia mom never wanted to get married or have kids - but now she's a happy a SAHM of two little ones!
Starting Potty training with my Son (Down Syndrome)...Any advice??
- leashombta
on Dec. 1, 2011 at 12:02 AM