So the early steps therapist finally came yesterday for a hands on evaluation for Payne (ds3, 9.5m)
The first thing she said when she came in and saw him was "wow, he is pretty floppy still isn't he?" :-(
He is behind in cognitive, gross motor, and fine motor. (I've been saying he was for months now and no one listened to me)
And she said she feels like he has hypotonia. (I've been saying this since about 3m old!!!)
It's not what you want to hear about your child but at the same time I'm glad someone sees what I have been seeing for so long!
She suggested we see a pediatric neurologist. I called my friend whose son just had the hemispherectomy (some of you may remember me talking about them) anyway she's knows neurologists and highly recommended one in N.O. She gave me her number so I will be calling this morning.
Not sure when Payne's therapy will start, it will be about a week before we get back the actual scores from the evaluation yesterday.
I don't know what I feel :-( sad, scared, mad (that no one listened sooner), relieved
Anyway please keep my tiny little man in your prayers. He is really small for his age (15lbs and was born almost 8lbs). I just want answers. He is such a sweet little man.
Oh and my name is Elizabeth :-)