We have Molly's annual IEP Review next Tuesday with her Team Leader, the lady who does the developmental overall assessments (also the Team Leaders wife, lol) her PT, and her ST, all present. They requested both DH and I and her older brother be present. They are coming to our house.
What is this about? Molly has made huge strides and has been found age appropriate in the most of the developmental domains. She technically only qualifies for PT now and BARELY (she is almost walking unassisted at 14.5 months)... is this sort of meeting common? I am freaking out for some reason.....
It should be an IFSP, I believe. I know when my daughter was in Early Intervention they did her review at the house, and they did want anyone who worked with her regularly to be present (ie my parents). Perhaps they're telling you she no longer needs services, or maybe they'll just tell you their new goals and move on. I wouldn't be concerned though.
Totally normal - don't even worry about it! We do ours every 6 months, but now that DS is so close to 3, we have a lot more meetings to talk about transitioning to the school district for speech. Just look at it as the opportunity for them to tell you how well she is doing!!! That's what I do.
OK, dont panic!! The first thing for you to know is that they are obligated to do meetings with you every 6 months, at a minimum. The contract you have for early intervention services is your IFSP, Individualized Family Service Plan.
Now, do you have new evals for all therapies? You need one for PT, one for OT, and get one for speech. They will say she is not eligible for speech therapy now, but just get the eval done.
I read on your profile that your little Princess had a stroke in utero, has she been diagnosed with CP?? My son has it, its mild, but he has all the symptoms of a PVL (periventricular leukomalacia) his eyes are good, but he has epilepsy, and we think the PVL is the reason why. It was two years after we diagnosed the Epilepsy that we confirmed the CP. I had suspected it for over a year by the time the doctor said he has it..
Also, go to www.familyvoices.org and look up the resources in your state. THere are CP agencies, and they can have an advocate work with you. Remember, EI services are supposed to take place in the child's environment, so that is home, or the daycare center. The meeting is meant to review things, make sure you review the goals on the IFSP, your daughter needs to meet ALL of them before any reductions in services can be done. Keep going with OT stuff, if you are getting good progress in PT, then you may want to cut back a llittle, but, dont stop entirely! Keep the OT things going, and make sure you point out anything that she CANNOT do!!
So, just know that the people in early intervention have an obligation to review things with you every six months, at a minimum. Get a speech eval, that should help get the PT to stay, because speech development requires a set of gross motor skills. THat helped my son, he got more PT when the speech therapist said he needed it.
We were in NJ early intervention for two years, and in our local school since March. Please send me a note if I can help, I hope everything goes well! I hope the meeting is not too stressful, and I hope you will still have a great day!! Love, Diane
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- Mom2LiamNMolly
on Aug. 19, 2009 at 9:38 PM