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Does anyone have a child with Junior RA?

Posted by on Apr. 25, 2013 at 1:30 PM
  • 10 Replies
Can you tell me about it?
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by on Apr. 25, 2013 at 1:30 PM
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Replies (1-10):
suzeebloch
by Ronna on Apr. 25, 2013 at 1:46 PM

I don't, so I can't give you any information about it.  Sorry.

marchantmom06
by Bronze Member on Apr. 25, 2013 at 1:49 PM
No problem! Thanks for your reply!


Quoting suzeebloch:

I don't, so I can't give you any information about it.  Sorry.


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getting2old
by on Apr. 25, 2013 at 1:59 PM
I have rheumatoid but didn't get it until I was 40. I feel very sad for a child to have this disease as it is painful and debilitating. Do u know a child with Junior RA?
marchantmom06
by Bronze Member on Apr. 25, 2013 at 2:12 PM
My 4 year old was just diagnosed with it.


Quoting getting2old:

I have rheumatoid but didn't get it until I was 40. I feel very sad for a child to have this disease as it is painful and debilitating. Do u know a child with Junior RA?

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getting2old
by on Apr. 25, 2013 at 3:35 PM
Oh bless his/her heart. And yours as your life has changed also. Research and switch doctors if u feel like your child isn't improving. It took me 3 years to feel like I was improving and I am on my 4th doctor.know that it can take a long time to find meds that work for each case. Best wishes to your family. Children should chase butterflies and not be in pain
louannwilkins
by Louann on Apr. 25, 2013 at 10:50 PM

I'm so sorry....I don't have any idea but hopefully someone will post something soon that will help you. 

Shellness
by Michell on Apr. 26, 2013 at 9:20 AM

 I do. She is 17 now and was diagnosed at 15. Took 3 years of suffering, every specialist type of doctor known gone to, before getting a good diagnosis. Now she has been on 3 different major meds. along with some anti-inflammatory drugs, and we seem to have found what is going to work for her, at least for now. Orencia, which she has to take intravenously. I have to drive her to Tampa, a 2 hour drive every 2 weeks now but it is going to go to once a month soon.

She has chronic stomach pain, and nausia that started at the age of 4. She also has chronic bladder and UTI infections.

I have crohns so I probably gave her a bad gene :(

marchantmom06
by Bronze Member on Apr. 26, 2013 at 11:57 AM
Thank you! We are going to try Embrel and go from there.


Quoting Shellness:

 I do. She is 17 now and was diagnosed at 15. Took 3 years of suffering, every specialist type of doctor known gone to, before getting a good diagnosis. Now she has been on 3 different major meds. along with some anti-inflammatory drugs, and we seem to have found what is going to work for her, at least for now. Orencia, which she has to take intravenously. I have to drive her to Tampa, a 2 hour drive every 2 weeks now but it is going to go to once a month soon.


She has chronic stomach pain, and nausia that started at the age of 4. She also has chronic bladder and UTI infections.


I have crohns so I probably gave her a bad gene :(


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Shellness
by Michell on Apr. 26, 2013 at 5:31 PM

 How many joints are affected? My dd Jamie has all of her major ones affected where some just have some joints. The embrel helped her about 50% of the joints and pain. She still felt like elephants were sitting on her knees and ankles. But I hope this one is the one for yours :( It takes a lot of time to find the thing that works for you sometimes and everyone is different. Jamie is getting better and only has baby elephants now, bless her heart.

Quoting marchantmom06:

Thank you! We are going to try Embrel and go from there.


Quoting Shellness:

 I do. She is 17 now and was diagnosed at 15. Took 3 years of suffering, every specialist type of doctor known gone to, before getting a good diagnosis. Now she has been on 3 different major meds. along with some anti-inflammatory drugs, and we seem to have found what is going to work for her, at least for now. Orencia, which she has to take intravenously. I have to drive her to Tampa, a 2 hour drive every 2 weeks now but it is going to go to once a month soon.


She has chronic stomach pain, and nausia that started at the age of 4. She also has chronic bladder and UTI infections.


I have crohns so I probably gave her a bad gene :(


 

DesignGirl450
by Lynda on Apr. 26, 2013 at 8:25 PM

My daughter was investigated for this very thoroughly by pediatric rheumatologists when she was 7-8 years old.  It turns out that she probably has toxic synovitis (inflammation of the synovial membrane around the head of the femoral bone where it joins the pelvic bone).   She still has what she calls "flare ups" of the pain, and takes Naproxen when this happens.  Fortunately, it seems to be occurring less frequently. 

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