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getting a bit scary now ... UPDATED 9:30 A.M. in red, update 10:15 in purple! new update post #21.

Posted by on Aug. 7, 2013 at 5:16 AM
  • 41 Replies

It's Wednesday morning, 4:00 a.m.  My brother just sent me this email:

Last night at 1030pm Mom came downstairs and started a load of laundry. at about 1145pm she came back down and started the dryer. At that time she opened my door and asked me why I wasn't at work and said it is dark outside.
OK just got up a few minutes ago, lights on upstairs tv on so I go upstairs and Mom said she was waiting on you. She said she was hungry and needed to eat dinner. She denied coming downstairs last night and said I must have been dreaming. Oh yeah and when I first went upstairs on my way up she said "Ronna ?"
What should I / we do?

This is getting downright scary now. I don't know what to do!  I emailed him back saying I'll check in on her around 8, a couple hours after he leaves for work and that I'll schedule her an appt with a neurologist - but then he said maybe wait a bit on that since it may be an isolated incident.  and then he said, "by the way, Dad's clothes are in the dryer."  

So I just got back - mom was sitting in the living room, in her recliner, drinking coffee and reading the Japanese newspaper my brother prints out each morning.  She vehemently denies what my brother says although there is a damp load of laundry in the dryer, and folded clean clothes on my dad's bed upstairs.  She says my brother is making this up and the two of us are intentionally trying to make her crazy.  I don't know what to think. My brother and I will keep an eye on her and see what happens ... ]

Based on what the majority of you have suggested, I just made my mom an appointment with the nurse practitioner for her doctor.  Her doctor doesn't have an opening until next week, but they can get mom in today at 3:00 with the nurse practitioner who can then refer her to a neurologist.
by on Aug. 7, 2013 at 5:16 AM
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Replies (1-10):
njt320
by Bronze Member on Aug. 7, 2013 at 6:02 AM
Dementia? My Dad is slowly getting it. :(
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LadySaphira
by Lisa on Aug. 7, 2013 at 6:18 AM

I am so sorry that you are going through this! I would not wait personally, it sounds like your mom is declining and the sooner you have her seen, the better. Based on the other things you have posted this was not an isolated incident. You may also want to speak to someone in your local department of aging (or equivalent), they will have a lot of information and a list of resources that can help you. How is your dad and Johnny?

suzeebloch
by Ronna on Aug. 7, 2013 at 6:21 AM

Thanks, Lisa.  thanks for the tip on calling dept of aging.  My brother just now emailed and said mom ate something and went to bed at 4:45 a.m.  I'll swing by around 9 to check in on her. 

Dad will be in the rehab center until a week from Saturday (i.e., 07/17).  Medicare will cover the cost of his care in the rehab center until then and they can continue working on his upper body strength. 

Johnny is doing great, as far as I can tell!  with that kid, it's more like "no news is good news." 

How's Adrienne and your mom? 


Quoting LadySaphira:

I am so sorry that you are going through this! I would not wait personally, it sounds like your mom is declining and the sooner you have her seen, the better. Based on the other things you have posted this was not an isolated incident. You may also want to speak to someone in your local department of aging (or equivalent), they will have a lot of information and a list of resources that can help you. How is your dad and Johnny?



louannwilkins
by Louann on Aug. 7, 2013 at 6:40 AM

I'm sorry.  If it were me I wouldn't wait.  I'd start with the family dr.  Even if you called and talked to them and asked where you should start.  I imagine it's worse now because your dad isn't there with her to move things along as they normally go, ya know.  Keep us posted.  Hugs to you AND your brother.    :)

LadySaphira
by Lisa on Aug. 7, 2013 at 6:44 AM

My mom is doing great, she is officially in remission. Her oncologist said that her effected lymph node have gone from the size of Tennis balls (in December) to the size of peas. She is finished with her chemo and only has to go get an IV antibiotic every Monday this month, then she will not have to been seen again for 6 months when she will havae the IV antibiotic every Monday again. That pattern will continue for 2 years, unless something crops up.

A is doing well, she has a cold at the moment but it is not slowing her down any. She recovered from her Shingles more rapidly than I though she would concidering how spread they wear and how misserable she was while she had them. Does Johnny get lots of cold sores? Every since A was on chemo the first time, I have noticed she gets them 4 or 5 times a year, she rarely got them before chemo.

Quoting suzeebloch:

Thanks, Lisa.  thanks for the tip on calling dept of aging.  My brother just now emailed and said mom ate something and went to bed at 4:45 a.m.  I'll swing by around 9 to check in on her. 

Dad will be in the rehab center until a week from Saturday (i.e., 07/17).  Medicare will cover the cost of his care in the rehab center until then and they can continue working on his upper body strength. 

Johnny is doing great, as far as I can tell!  with that kid, it's more like "no news is good news." 

How's Adrienne and your mom? 


Quoting LadySaphira:

I am so sorry that you are going through this! I would not wait personally, it sounds like your mom is declining and the sooner you have her seen, the better. Based on the other things you have posted this was not an isolated incident. You may also want to speak to someone in your local department of aging (or equivalent), they will have a lot of information and a list of resources that can help you. How is your dad and Johnny?




suzeebloch
by Ronna on Aug. 7, 2013 at 7:06 AM

Yay on your mom!  That must be a relief for everyone involved. 

Johnny hasn't mentioned any cold sores.  I'm glad Adrienne has recovered from those shingles.  Johnny is thinking about switching to Vimpat (to replace Keppra) but since it's not generic, the initial cost he found was around $1000 a month - I sent him (again) a discount pharmacy website where, according to them, it would cost around $300+ a month.  He has had another "awake seizure" since switching to a low-carb way of eating and the epilepsy specialist said if/when that happened, she would like him to switch to Vimpat.  He is thinking about doing that now.  If he can get it for the $300+ a month he said he can afford that - but wants to continue this way of eating to see if it has any impact on the remaining tumor, at least until October when he has his next MRI.   We are hoping to see a reduction in the size - so far all MRIs since surgery 2 years ago show that it has remained "stable" and "unchanged." 


Quoting LadySaphira:

My mom is doing great, she is officially in remission. Her oncologist said that her effected lymph node have gone from the size of Tennis balls (in December) to the size of peas. She is finished with her chemo and only has to go get an IV antibiotic every Monday this month, then she will not have to been seen again for 6 months when she will havae the IV antibiotic every Monday again. That pattern will continue for 2 years, unless something crops up.

A is doing well, she has a cold at the moment but it is not slowing her down any. She recovered from her Shingles more rapidly than I though she would concidering how spread they wear and how misserable she was while she had them. Does Johnny get lots of cold sores? Every since A was on chemo the first time, I have noticed she gets them 4 or 5 times a year, she rarely got them before chemo.

Quoting suzeebloch:

Thanks, Lisa.  thanks for the tip on calling dept of aging.  My brother just now emailed and said mom ate something and went to bed at 4:45 a.m.  I'll swing by around 9 to check in on her. 

Dad will be in the rehab center until a week from Saturday (i.e., 07/17).  Medicare will cover the cost of his care in the rehab center until then and they can continue working on his upper body strength. 

Johnny is doing great, as far as I can tell!  with that kid, it's more like "no news is good news." 

How's Adrienne and your mom? 


Quoting LadySaphira:

I am so sorry that you are going through this! I would not wait personally, it sounds like your mom is declining and the sooner you have her seen, the better. Based on the other things you have posted this was not an isolated incident. You may also want to speak to someone in your local department of aging (or equivalent), they will have a lot of information and a list of resources that can help you. How is your dad and Johnny?






Bleacheddecay
by Gold Member on Aug. 7, 2013 at 8:39 AM

I'm so sorry. *HUGS* I agree about not waiting. If it were me I'd want to be diagnosed and put on meds that may help me retain whatever I had left ASAP.

marchantmom06
by Bronze Member on Aug. 7, 2013 at 8:49 AM
Low blood sugar can cause dementia like episodes as well as high blood pressure. I wouldn't wait for anything, because a small stroke can cause confusion as well. There are too many scary things that could be going on. Better safe than sorry. Take her to the PCP first. Good luck
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Why123
by Nancy on Aug. 7, 2013 at 9:22 AM

I think Medicare will help cover the cost of a home health aide to be with her at least part of the time.  I hope she gets better.  I worry about the effect on you.

mac1940
by Mary Ann on Aug. 7, 2013 at 10:54 AM
1 mom liked this

Ronna, please don't wait to get your mom into see a doctor.  I guess I can't say what happens in your area but I think you need a referral from her primary care doc before you can get into a neurologist.  So you might first want to get an appointment with her primary.  She will more than likely have periods of being coherent  and during those she will vehemently deny periods of irrational behavior.    

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