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40ish and beyond... 40ish and beyond...

Osteoporosis...

Posted by on Jan. 24, 2013 at 4:39 PM
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I was on steroids for years for lupus and went through surgical menopause in my early 30s, so yes, I have risk factors. I have been on and off of fosamax over the years. I hate taking it because I have digestive issues. Well, the rheumatologist's office just called and the latest scan shows osteopenia in the left hip and severe osteoporosis in the spine. I have disc degenerative disease of the spine, so this is not good news. I have lost a couple of inches in height. I now have to have bone marker tests done. 

I don't fit the stereotype for osteoporosis at all...the thin little old lady. I am, hmmm, morbidly obese. I have to say that one of the things people do not think about with osteoporosis is the PAIN. ouch

Just wanted to vent. My rheumatologist is a recognized researcher in the field, so I need to take comfort in that.

by on Jan. 24, 2013 at 4:39 PM
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Replies (1-6):
dana63
by Momma of 40ish on Jan. 24, 2013 at 5:09 PM

 I am so sorry and hope you get relief.. HUgs and vent anytime..

redlady125
by Silver sister on Jan. 24, 2013 at 7:30 PM
I hope u feel better and I no u will be in some pain but it will get better .
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tossed
by Sister on Jan. 24, 2013 at 8:36 PM


Thanks, the thing is that it continues to get worse. Between the rheumatoid arthritis, fibromyalgia, systemic lupus, degenerative disc disease, herniated discs and the upgrade from osteopenia to severe osteoporosis, it just seems to get worse. I am on potent pain medications, but they don't seem to work. Having a major pity party.

Quoting redlady125:

I hope u feel better and I no u will be in some pain but it will get better .



SeanandNoahsmom
by Manning Fan on Jan. 24, 2013 at 10:11 PM

 I am sorry you are so miserable; is there any kind of therapy that may help with your pain? Like acupuncture? Because if your pain meds don't help you, it would be better not to take them. Causes a lot of other medical issues.

tossed
by Sister on Jan. 24, 2013 at 10:55 PM



Quoting SeanandNoahsmom:

 I am sorry you are so miserable; is there any kind of therapy that may help with your pain? Like acupuncture? Because if your pain meds don't help you, it would be better not to take them. Causes a lot of other medical issues.


Without the pain meds, I can't move at all...over time, we have tried various things and the different pain management specialists agree that the current regimen is correct, but could be stronger. I have resisted the increase in medication levels because I don't want to maximize what can be taken. I did have a recommendation to go to a much stronger med...no...I use the fentanyl patch with hydrocodone for breakthrough. I have had epidural injections before and it looks like we are going to have to do that again. The rheumatologist will work on the appropriate drugs for the osteoporosis once he has the bone marker test results. He has an arthritis and osteoporosis research center and does a lot with infusions. I am facing surgery on my neck...my neurosurgeon relocated his practice, so I have to find a new surgeon. I have digestive issues, so oral meds are tough. I use a tens unit. I have had physical therapy including some ultrasound treatments, but I swell easily. Oh well....

tossed
by Sister on Jan. 24, 2013 at 11:21 PM

I did not make myself clear. I have dealt with osteopenia for more than a decade; no amount of calcium or medication has helped and now the condition has advanced to severe osteoporosis. I have broken both wrists, right arm, left foot (2x), left tibia, left fibula, and ribs. I have had spinal fractures and the concern is that I will break my hip. I am just frustrated that we have lost ground and the condition is much worse. I have brain complications from lupus and lose my balance easily. Maybe time to go back to the wheelchair like the spinal orthopedic surgeon wants.

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