I am fairly new to this group so I thought I would share my story. Last year in April 2011 during a routine annual physical with my doctor they found some abnormailities in my blood work results. My doctor referred me to a hematologist/oncologist for further tests. At that point I was told I have Monoclonal Gammopathy of Unknown Significance(MGUS). I was like ok what the heck is that...and the doctor replied its basically a pre-cancerous condition. (picture me getting punched in the gut).
So at that time we did some further testing (bone marrow biopsy (not fun at all), skelatal survey (basically an xray of your entire body searching for bone lesions) and a 24 hour urine collection test (such fun LOL). Then the hematologist said ok your levels are ok and we are just going to monitor your blood work every 2 months and when there are changes we will discuss treatments.
Then in October after a couple rechecks of my blood work and no changes my hematologist/oncologist stating that she wanted me to prepare myself for another bone marrow biopsy in May 2012 and begin treatment in summer 2012. My response was treatment for what? and she simply said cancer. (my mind was like hang on put on the brakes). no change in anything why starting treatment??? time for a 2nd opinion so off to Dana Farber in Boston with my husband (who has been amazing through all this).
This hematologist/oncologist reviewed everything including new blood work he took. He indicated that based on his experience with my blood levels where they were I was more accurately diagnosed with Multiple Myeloma (bone marrow cancer). So I decided to switch my local hematologist/ocologist and I have found a doctor at Yale who is much more familiar with my type of cancer.
I have been going to a support group for Multiple Myeloma patients and caregivers along with doing so much research to learn as much as I can. As of right now I am currently not at a point where I need treatment (chemo and/or stem cell transplant) but I am told that at some point my cancer will progress and that I will need treatment.
So that's my story. If there are any other Multiple Myeloma patients out there who want to chat please contact me.