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Posted by on May. 10, 2010 at 5:49 PM
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Hi everyone,

My name is Linda, I´m thirty and I have three children, 6 year old daughter, 3 year old son and a 15 month old daughter with right hemiplegia. 

When I was pregnant with my third child I knew something was off.  Her movements were so few and far between. I suspected that the child would be paralyzed in some way but I had a hard time getting someone to listen to my concerns.  I had a c-section at 40 weeks and we were told the baby was fine but a little bit unstable so they had to take her to the NICU. I saw her crying and moving all limbs so I was relieved and thought everything would be fine. She however started having seizures the next day and was on life support for 10 days.  There was bleeding in about a quarter of her brain, both on the left and right side. We were given little hope for her future and  for a few months we believed the doctors but then she started surprising us and still does. She is now 15 months old and has been getting physical therapy since she was 2 weeks old and occupational therapy since she was 9 months.   The next month she is starting kindergarten and will have a developmental trainer with her the whole time she´s there. I´m really looking forward to that and I think we will be seeing great improvements this summer. 

Linda


Posted by on May. 10, 2010 at 5:49 PM
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MariaC68
by Group Owner on May. 24, 2010 at 6:38 AM

Welcome to the group - have you visted the website http://www.chasa.org/?  There is a great support group - Hemi-kids with over 1700 members and counting...check it out.  If you have any questions, feel free to e-mail me...mariacasella@yahoo.com

Maria

momof3boys925
by Member on Jul. 28, 2010 at 5:03 PM

Hi Linda, Congratulations on your daughter's successes.  How has her summer been going? 

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