My grandson was born with DGS on Oct.18,2007- We lost him on Nov. 29,2008.
We are trying to spread the word on DGS /start a foundation so that the right doctors can be found no matter where you live. Currently have a social network under construction and an active blog. www.elijahslegacy.blogspot.com/
Saw this site and the words 'DiGeorge awareness day' . But can't get it to come up. Trying to gather all the info. I can get.
Grammiechelle
Posted by
on Apr. 29, 2009 at 1:44 AM
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22Q11.2 distal deletion..does anyone know anything about this???
- grammiechelle
on Apr. 29, 2009 at 1:44 AM