No more Asperger's???

Replies:

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• by
  • bupkie
  on Nov. 6, 2009 at 12:45 PM

• Thanks Mamarita for your reply!!!   

  I see and completely understand the side where ALL children on the spectrum, no matter what their diagnosis is labeled,  should ALL be qualified for services.  Period. 

  What *scares the living *** out of me *  is for all the parents who don't understand or know about the possibilities of the spectrum, the range of diagnosis...   the mere existance of what Aspergers is.... compared to non-verbal Autism.   I didn't!  

  11 years ago, I had NO IDEA, WHAT that ASPERGERS existed.  I thought Autism was just "autism".   Just no eye-contact, children who have trouble speaking, relating, and live in their own little world.   That they could regress....      That's about it.  How wrong I was! (Duh - me!!!)     I panicked when my infant wouldn't keep eye contact - but because of his "normal milestones"  the Dr. reassured me he was fine.     As he grew, we suspected ADHD,   but I always felt something wasn't right... (He showed signs, symptoms that as I look back = all SCREAM AUTISM spectrum, Aspergers.   I had to diagnose him myself - finally researching and learning on my own, and then, convince his Dr to refer him for testing, it took till age 9-10 years!   The Dr's should have caught it.... but they didn't.   How scary is that?  

  My fear is also that so many kids will be again mis-diagnosed with ADHD, and left off the spectrum, if they aren't severe enough to be labeled as Autistic... (Just because they get rid of Aspergers name, doesn't mean the same people are going to accept their same symptoms on the spectrum and give them services.)   

  I just don't want any child's needs devalued.  This situation certainly speeks to a need here that isn't being met!   Children are being left behind!   And that's wrong!     It all scares me!     

   

  Bupkie.....
  
  *** My philosophy on sharing info is that it's just free info (not advice) so please take it or leave it. If it fits great! If not, leave it on the ground and dance on it for fun!!! :) ***

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• by
  • pamprdmama1
  on Nov. 6, 2009 at 7:28 PM

• I haven't heard that one yet, but my son was initially diagnosed PDD-NOS (in NY); In order to get services, he had to be documented as Autistic. We're due for an IEP next week; I'll see if the school psychologist has heard anything.
  

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• by
  • Mom25monsters
  on Nov. 7, 2009 at 10:23 AM

• 
  

  Thank you Mama Rita!  I tried to imbed the link, but it just would not work.  That is the exact article that I was talking about.

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• by
  • Kattx5
  on Nov. 8, 2009 at 9:37 AM

• This is a double sword in some states where services are great this is good to have an autism disorder and  in some cases.  Insurance companies will not pay if or even offer services with out a straight autism disorder. I had a PPD diagnosis and  could barely get any services and now we can get awesome services since his diagnosis. So its a double edge sword

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• by
  • dewey
  on Nov. 8, 2009 at 10:48 AM

• I think this is great, becaue the state of Florida doesn't recognize the DX of Aspergers.  If my son need any type of service sin the state of Florida I would have to go with one of his other  DX. 

    

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