Lane has started ticking almost uncontrollable, It's mostly with his face & neck. He blinks his eyes super fast, grinds his teeth & chews all at the same time. He has also started grinding his teeth real bad when the ticks start.
I was wondering if he needs to have a EEG done? Looking for any advise! Thanks to anyone with answers. Rita
Oh Rita I have no idea on that one , bless his heart . That sounds to me like his nerves system ..He might need one , so many different signs that we just don't no what is causing him to do that . I will be saying some prayers for Lane .. Hope some other mom might have an answer for ya .. BIG HUGS .No Kyle has never had to have one wish that I could help you .. love ya .God bless him ..
I can hear the worry in your voice, Big Hugs to You!
We're watching Elizabeth now for signs that she might need one because of the muscle spasms - While Lane is experiencing the ticks, can you refocus his attention? Will he respond to you? I would see about having an EEG done just to be on the safe side.
I wish I had more info to help! You'll be in our prayers!
God bless these kids and the things they go through!!! Taran has had an EEG. He had facial tics and would not respond to his name (also typical ASD behavior). His EEG was just part of process and elimination of getting the ASD dx. Is Lane on any meds that may have the tics as a side effect? Not much help, but we're here for you!!!!
One of my sons suddenly starting having problems with facial tics several years ago, and when we reduced the dosage of one of his meds they stopped. (He had been on the same dosage for a while, so it wasn't anything new.) If Lane is taking any meds, you might want to consider the possibility that he needs an adjustment.
I hope you get it figured out quickly....I have 3 ASD sons, and I know that it always seems as soon as 1 problem is dealt with, a new one pops up!
Hugs!!
Kerin
Thank all of you for your sweet replies. Yes Lane is taking 0,2 mg dosage of (
Thanks again ladies, I can always count on you for support & answers. Rita
I can understand your concern. My son has had an EEG done. He was sometimes moving his head a certain way and we werent sure if he was just stimming or if he was having a mild seizure. We talked to his doctor and they ordered an EEG. Turns out my son was fine. Talk to your son's pediatrician and see what they say. If they are concerned about it they will probably refer him to a neurologist and then the neurologist will meet with him and with you and possibly schedule the EEG. He will have to be very tired for the EEG (difficult to do with an autistic child,especially if yours is on the go all the time like mine is). I tried the first time to get the EEG without success as my son wouldn't be calm for the test, and they have to be very calm or else asleep for the results to be accurate. You cannot medicate them either for the test as the medication affects the brain and gives a false reading. The second time we did it at a hospital that specializes in children with Autism and it made all the difference in the world. Good luck to you and I hope you can find the answers. It's always so emotional going through these issues with Autism because we never know if there is truly a problem or if it is just self stimulization...
My prayers are with you.
My son is 5 and has been diagnosed with Autism within the past year. He has also had facial tics. They thought that he was having petit mal seizures, and he has been through at least 6 EEG's. They were never able to find any type of seizure activity but he does occasionally have tics. It's kind of odd because the tics come and go and I notice he does it most when he is nervous or upset. I think they did the EEG's to rule out any other type of problem.
We've had many EEGs done this past year, including a 60 hour EEG last week (that was rough). Olivia was on seizure meds for 15 months because they were SURE she was having seizures. Come to find out that NONE of the times they thought she was seizing were actual seizures. I would definitely have an EEG done if you think it could be more than ticks. Out of all the EEGs we had done they kept saying there *could* be something there, but for us there just wasn't. Hard to put them through the testing, especially when there are major communication delays, but in the end it helps.
Attempted an EEG when my son was 2 and 1/2 yrs age and he fought so hard to not have the electrodes on his scalp that we couldn't get a good complete one...the sedation wouldn't calm him enough to keep him still and get the "sedated" part of the EEG done. My son had been diagnosed as PDD but I believe he always had had seizures, starting in utero, but the doctors never saw them happening. My son is in his teens now and we tried at age 8 and again at 15 to do the EEG, but it couldn't be done without his cooperation. I say he has seizures all the time and they are barely noticeable--no one else recognizes them when they happen...they cause aggression when he is having one of these and someone gets in front of his face or talks to him..I've seen him sleepwalk, but I didn't realize it right away, and when I spoke to him, or even when I stood in front of him and then he seemed to not know who I was, he attacked me. It is extremely important to get this done if you can as young as possible for him, because he needs to be on anti-seizure meds....I forget how many thousands of brain cells are killed off with every seizure, but it's a lot and a developing child can even less afford this than an adult. As far as the tics and toothgrinding, is he already on some meds for something else? Because if he is, two could be synergistic, that is, acting against each other, and causing harm, or one or more could be the wrong drug for him or the wrong dosage....if he is being overmedicated, or even if not, tics could occur just as a side effect of some meds. My son had that happen with Geodon, also with Clonodine. Read the literature from the pharmacy printout re side affects and if that's what's happening, call doctor immediately to discuss weaning off that drug. By the way, there is a condition I read about which gets misdiagnosed 80% of the time as autism. It is when a child has an onset of seizures and soon after starts vomiting blood....it causes aphasia, stomping up and down, and trance-like seizure activity in which child seems to be hallucinating...it is AEA, or Acute Epileptic Aphasia, and it is treatable and the sooner treated the less brain damage occurs (of course). So an EEG is really essential. My son had all these symptoms occur at an early age and I believe they were side effects of Risperdal. He was put on Risperdal soon after being diagnosed with Autism, at age 5, because the day of a quarterly evaluation for autism services, he was having a full-blown tantrum like I had never seen before (turns out he had been abused by his school van driver)...so the doctor eval'g put him on Risperdal, which he stayed on 7 yrs + , and he sufferred vomiting for years that the doctor said he must've been forcing himself to do..my son was in extreme pain, when I finally got the necessary referral for a gastroenterologist, we found out he had GERD (gastroesophageal reflux disease)....all caused by years of Risperdal, along with rapid excessive weight gain (50 lbs in two weeks), loss of hair (bald by 14)......So if any of you out there go along with the docs' "drug of choice for treating ASD", Risperdal, these are the things that could happen to YOUR child, and the docs will never believe it, never warn you, and that is, they won't admit it even after it happens. My son went from a bright child with no "stereotypical behaviors" , who was learning to speak, to one who lost all his gains and became self-abusive, after Risperdal was started. Good luck.
Kate in PA, only parent in autistic son's life
Quoting AkchlyK8:
Attempted an EEG when my son was 2 and 1/2 yrs age and he fought so hard to not have the electrodes on his scalp that we couldn't get a good complete one...the sedation wouldn't calm him enough to keep him still and get the "sedated" part of the EEG done. My son had been diagnosed as PDD but I believe he always had had seizures, starting in utero, but the doctors never saw them happening. My son is in his teens now and we tried at age 8 and again at 15 to do the EEG, but it couldn't be done without his cooperation. I say he has seizures all the time and they are barely noticeable--no one else recognizes them when they happen...they cause aggression when he is having one of these and someone gets in front of his face or talks to him..I've seen him sleepwalk, but I didn't realize it right away, and when I spoke to him, or even when I stood in front of him and then he seemed to not know who I was, he attacked me. It is extremely important to get this done if you can as young as possible for him, because he needs to be on anti-seizure meds....I forget how many thousands of brain cells are killed off with every seizure, but it's a lot and a developing child can even less afford this than an adult. As far as the tics and toothgrinding, is he already on some meds for something else? Because if he is, two could be synergistic, that is, acting against each other, and causing harm, or one or more could be the wrong drug for him or the wrong dosage....if he is being overmedicated, or even if not, tics could occur just as a side effect of some meds. My son had that happen with Geodon, also with Clonodine. Read the literature from the pharmacy printout re side affects and if that's what's happening, call doctor immediately to discuss weaning off that drug. By the way, there is a condition I read about which gets misdiagnosed 80% of the time as autism. It is when a child has an onset of seizures and soon after starts vomiting blood....it causes aphasia, stomping up and down, and trance-like seizure activity in which child seems to be hallucinating...it is AEA, or Acute Epileptic Aphasia, and it is treatable and the sooner treated the less brain damage occurs (of course). So an EEG is really essential. My son had all these symptoms occur at an early age and I believe they were side effects of Risperdal. He was put on Risperdal soon after being diagnosed with Autism, at age 5, because the day of a quarterly evaluation for autism services, he was having a full-blown tantrum like I had never seen before (turns out he had been abused by his school van driver)...so the doctor eval'g put him on Risperdal, which he stayed on 7 yrs + , and he sufferred vomiting for years that the doctor said he must've been forcing himself to do..my son was in extreme pain, when I finally got the necessary referral for a gastroenterologist, we found out he had GERD (gastroesophageal reflux disease)....all caused by years of Risperdal, along with rapid excessive weight gain (50 lbs in two weeks), loss of hair (bald by 14)......So if any of you out there go along with the docs' "drug of choice for treating ASD", Risperdal, these are the things that could happen to YOUR child, and the docs will never believe it, never warn you, and that is, they won't admit it even after it happens. My son went from a bright child with no "stereotypical behaviors" , who was learning to speak, to one who lost all his gains and became self-abusive, after Risperdal was started. Good luck.
Kate in PA, only parent in autistic son's life
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on Nov. 19, 2009 at 5:07 PM