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When do you know your child needs a behavioral specialist?

Posted by on Aug. 19, 2011 at 3:01 PM
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We are at our wits end sometimes with all the things that he will get into. My DS is 4 and will get into the refrigerator constantly. He will pour out pitchers of drinks (just did this one), put things in there..a banana the other day, will take food out like pepperonis and strawberries and will go running with them. He digs under the elements on the stove to get the burnt residue under there and will put it in his mouth. He will push any button that is near him, cell phones, dvd players, wii. These behaviors are not just at home. He is a wanderer and a runner. He is almost non-verbal. I get no advice whatsoever from his ped. other than he will eventually stop. What do you think? If his doctor thinks this, is she gonna give me a reference for him to see one. He is enrolled and attending a public school special ed pre-k (2nd yr) and receives OT and ST there. We are seeking outside services as well. I guess I just wanted some input. Has ABA or other than the listed therapies helped? If someone tells me get him on the GF/CF diet, it is not possible. It is too expensive and a nightmare. We tried this and I thought I was gonna lose my mind. Plus my DS is small/skinny for his age and he was losing weight. Maybe I am just having "one of those days" , but I am seriously tired of not being able to get through to him. I seriously need guidance or something. Thanks for listening :)

 Angie aka homemommie

by on Aug. 19, 2011 at 3:01 PM
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Replies (1-10):
AngelaPatton
by Bronze Member on Aug. 19, 2011 at 10:09 PM
We were very lucky in that our senior ABA therapist was a behavior specialist. He worked wonders for our son who was Houdini on anphedimine.
A behavior specialist is needed when your child's behavior is interfering with his development, which it clearly is.

Our pediatrician told us to ignore his behavior and it would go away. My son put his head through a window tantruming for a cookie. I dropped the doc like a rock the minute my foster child's pediatrician told me there was something not right with our son's behavior. She was the doc for both kids before I even left the office.

BTW, I know it's a serious pain, but definitely find a way to lock up the fridge before you find a pet in the fridge or an egg in the heat vent. Been there, done that :P
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Brandifish
by New Member on Aug. 20, 2011 at 11:14 AM
Get ada asap!
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Gemini5
by Member on Aug. 21, 2011 at 2:20 AM

His ped is an ass-yes an ass- your son needs aba therapy or at the very least behavioural services-my son still goes through all what you have described but less and less episodes now since having aba therapy and behavioural therapist-hugz good luck! You know ayour child best and if the doc won't give you a referall seek one out from a different doc-hang in there you are not alone.

PDDson
by Member on Aug. 21, 2011 at 3:19 PM


    Your son's behavior sounds so much like mine when he was 3 &4.   First, I would suggest you get a pediatrician (developmental) who specializes in ASD kids.   We have them here & this is not a big town.  A pediatrician who understands autism will know who to refer you to - probably would have done it by now - and knows who in your community is BEST.  They know all the service providers & will be your #1 source of direction.

   Then you need serious (annoying though it is) child-profing - fix as much as possible so that he can't get into it.  There are refrigerator locks, cabinet latches & I had to put hook & eye locks up high on some doors.

  Next, for  us, came the question: "So, what are you thinking about his obvious ADD?"  I about fell off my chair.  With all that going on in my house, it had never dawned on me that this might be ADD.  My son's psychiatrist & neurologist collaborated on trying several calming meds &, for us, the winner was strattera.  He was probably 4 when he started on a small dose of that.  HEAVEN.  He could suddenly sit & build tunnels for his cars to drive through, work on puzzels, color with markers, etc.  I would have slit my wrists if someone had taken strattera away from him then.  He's off it now & the hyperactivity is gone.

  Just be sure you are surrounded by as many people trained in ASD as possible & you should get good guidance.

Kathleen

Beth100
by Bronze Member on Aug. 21, 2011 at 4:36 PM

 

                I have an ASD grandson.  I have been called to his mother's house early in the am, because he dumped EVERYTHING from the cabinets and refrigerator on the floor, during the wee hours of the morning.  We Got a lock to put on the refrigerator, and all the cupboards and drawers.  It's a pain, but then you can at least have a minutes peace.  ABA therapy helps, but you have to tell the therapist what you are having problems with , so they can address it.  But the locks will do you a world of good.  Beth100

----- Visit my CafeMom homepage at http://www.cafemom.com/home/Beth100
DACIA79
by Member on Aug. 21, 2011 at 7:37 PM
What she said

Quoting Brandifish:

Get ada asap!
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MSROCKY
by Member on Aug. 21, 2011 at 7:39 PM

My son also had an ABA which helped with his behavior!  I'm not to fond of peds not even developmental peds.  They tend to give conflicting messages.  And I definitely agree with the refrigerator & cabinet locks!  Better to be SAFE...And as I always tell my family members who think I overreact - Safety is First!  Don't worry about what people think - you'll have a peace of mind & you won't be so stressed...

NhMoose_X-ing
by New Member on Aug. 21, 2011 at 10:14 PM

I am new at this our son is 14 and was recently diagnosed with Asperger's/High Functioning Autism. His PED told us it was just ADHD and he had behavioral issues.  We went to CHaD it is a children's hospital and right off the bat they were right on top of things. New diagnosis, therapy, new meds.... all these years for wondering what was wrong and to think I was a horrible parent to find out it was Asperger's...  Got find a good children hospital that has a department that specialize in Autism.  I tell people all the time at PED is only for stomach aches not for anything else. We see specialist all the time.   And get rid of this PED and find a new one.  Get in touch with Autism Speaks, they helped us find what we needed in our area.  Like I said I an NEW at this If there is ONE thing to take out of my ramblings is do not rely on your PED and seek out a children's hospital like CHaD.  Things will get better.

homemommie
by Member on Aug. 21, 2011 at 11:21 PM

Thank you all for commenting on this post. I am gonna call his ped tom. to see if I can get more info or referrals to a behavioral specialist and let her know about these behavors and maybe she can have some input. If not, I will go to one that will. I can not go on like this stressed all the time. This has got to be hard on him too. He can't express himself completely (not in words) I know he is just right there, waiting for something to happen that will trigger his voice. All I want to do is help him.

LISALORAINNE
by New Member on Aug. 22, 2011 at 2:32 PM

Hi, I was having the same problem with my son in the kitchen.I finaly got a nice strong gate door from home depot and put it so he couldn't get in the kitchen .It was the best purchase I ever made.

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