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12 yr old was Just diagnosed with Autism

Posted by on Oct. 9, 2013 at 8:23 PM
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Our son was recently diagnosed with Autism (a little over a week ago). We have been fighting since he was 3 to get a clear diagnosis. He was first diagnosed with ODD and then ADHD with Bipolar. It has been a long hard struggle, but now with a clear direction We only want what is best for our son so that he can live a long an full life. As I said we are new to this and are still trying to find out what works for him and how we can better ourselves and him. Any and all advice is welcome! God Bless you all!

Kristy Kempster


by on Oct. 9, 2013 at 8:23 PM
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Tawneekitn
by New Member on Oct. 9, 2013 at 10:23 PM

My son was also not "officially" diagnosed as ASD until he was 12.  People had asked if he was ASD when he started Kindergarten, and I even took him to a supposed "specialist"  who told me that he was ADHD, after a 30-minute meeting.  It can be hard to find information and get help.  Luckily, since I was dealing with it since my son was young and I was pretty sure he had autism, I had already read up on autism, signs of it, how kids can react, how to deal with certain issues, etc.- so I knew quite a bit.  Your school should be able to help you find some resources.  Try going to the school's office, or their special ed department.  They should be able to direct you to support groups, and if there are any training classes going on in your area - they should know where they are.  You can also go on facebook and try to see if there are any groups in your area - we have one in my small hometown.  It can be an uphill battle - but if you are not already working with your school's special ed department, get them on board.  They actually are a good resource - although, sometimes you have to learn to be stubborn when working with them.

Tawneekitn
by New Member on Oct. 9, 2013 at 10:25 PM

You can message me if you would like to tall.  I have to admit that I have stubbled through things and don't really know that much.  But I would be willing to share and help as much as I can. :-)

ConnieHammer
by Member on Oct. 10, 2013 at 11:16 AM

Kristy, You must be somewhat relieved to finally get a clear diagnosis - what a journey so far! The 'label' should help you access services for your son but there is so much you can do in addition to the 'experts'. I am sure you are already doing a lot to help him without realizing it. Here are a few articles that might be helpful in giving you some direction.

Don't Wait for the Experts!

Finding the Best Services for a Child on the Autism Spectrum

Please feel free to message me if you would like to chat. 


mogadishukim
by Member on Oct. 10, 2013 at 5:01 PM

Talking about Curing Autism, T.A.C.A. Is a fantastic resource for first diagnosed. 

www.tacanow.org

Look under Family Resources,  then Newly Diagnosed.

Gluten free, casein free, soy free and as much organic as possible makes a dramatic impact and benefit for many of our kiddos, My son included. 


Thea50
by Member on Oct. 12, 2013 at 6:54 PM

Welcome Kristy. My heart breaks to hear that your son was recently diagnosed with Autism at 12 years old. Autism is a catchall word for communications, behavior and social issues. Autism changes depending on whether you, the parent, is talking to a teacher, doctor or a social worker. A student with autism may have splinter skills, may need academic supports to complete state tests, or a behavioral program to reduce anxiety (or tantrums). A patient with autism is assessed for developmental issues, should as speech, motor coordination, behavior, and cognitive skills. The state agency will ask questions to determine if your child is eligible for services. Since your child is under 14 years old, call your child service agency and update them with his diagnosis.  Your son may be eligible as a child and then you have to do the eligibility assessment  again before age sixteen (or fifteen).  Each state has different rules for eligibility.  If your child does not have a Individual Education Plan (IEP), you have to determine if he needs a full/partial one to complete his education. Find an autism agency in your area or go online to search. Local agency who deals with autism can provide you with answers and many provide workshops and seminars for topics on IEP, SSI/SSDI and Transition to adult.   I hope this helps.  Your pediatrician should be able assign a social/case worker.   I have a teen so I understand the challenge, the questions and the frustration. This is a great group. We are here to help each other.

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