Hi Everyone!
My name is Carolyn. I have two daughters. My youngest was born in January w/ 22q11.2 deletion syndrome aka Velocardiofacial Syndrome She has a soft cleft palate (no uvula or "small tongue"). She has had ear tubes put in but her surgery isn't until January 6th. That is when they will repair her throat and put in new tubes. Right now she can't suck really. She has a special bottle w/a diaphram. Its just nice to be able to talk to other people that share a commonality.
Thank you for letting me share!!
Carolyn
Posted by
on Oct. 10, 2008 at 3:27 AM
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update on candace
- rose-of-tralee
on Oct. 10, 2008 at 3:27 AM